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Saturday, November 29, 2008

Diabetes Dx Journey Part 2

***If you haven't read Part 1, then this post might not make sense. To read it, click here.

I couldn't believe what I was hearing when Elise's doc told us we needed to take her to Children's Hospital that night. I am so thankful that we were surrounded by some wonderful friends that were at our house for Elise's birthday party. They stayed with us until we had packed our bags, and even cleaned up our house.

We had also called some friends to see if they could look after our dog Seven while we were at the hospital. Pam and Michael live all the way in Richardson, but *just happened* to be in Irving at an event. If you don't know DFW geography, Irving is right on the way to the hospital from our house. Pam and Michael took wonderful care of Seven, even keeping her for a few days after we got home so we could get settled.

On the way to the hospital, all sorts of thoughts ran through my mind, mostly ones where I blamed myself for Elise being sick. It was hard to believe that my daughter, who looked as healthy as any other baby, had this horrible disease raging inside of her. I was also so scared of the unknown. I didn't know what this meant for Elise right now and in her future. And was praying hard, that somewhere, someone had made a mistake.

We checked into the hospital Saturday night and didn't leave until Tuesday afternoon. Those days were a whirlwind of doctors, nurses, information, education and lots and lots of tears. We learned what diabetes
is and isn't, how to test blood sugar, how to give insulin shots, how to count carbs and monitor Elise's diet so her blood sugar wouldn't get too high or too low, and what to do if it did.

I've made a lot of progress since we were released from the hospital a week ago. I can now give Elise her insulin without any help; something that would have sent me into hysterics before (I have a teeny-tiny aversion to needles. Actually, make that an incredibly huge phobia). I can more-or-less figure out her carb intake without getting a headache, although I still have a lot to learn in that department. Who knew algebra would EVER come in handy? Thank God I have a husband that uses that part of his brain... solving for x makes me cry.

And thankfully, I can look at my baby girl without the word "broken" tarnishing her beautiful face. I hate that I felt this way, but I'm beginning to see she's a little girl who happens to have diabetes.

Just like like I'm a girl (okay, woman), who has chronic back pain, or you're a person that suffers from migraines, or you might know someone with arthritis, or your brother who is autistic, or that girl you went to school with who had epilepsy. You get my point? We all have our stuff, and it sucks. But it shouldn't define us. We're not broken, the world we live in is. And one day my back won't hurt, and my little girl will never need to be poked with another needle, ever again.

Diabetes Dx Journey Part 1

***This is a post from my other blog that I wrote right after Elise was dx. I wanted to repeat it here for those who haven't read it before.

A fluke. That is how we found out that Elise has diabetes. She had no symptoms, and we had no reason to suspect anything was wrong with her. Because she had been diagnosed with UTIs a few months ago, the doc decided to do a urine test at Elise's 12 month appointment just to make sure it was clean. I think they were as surprised as we were when they found sugar in her urine.

When I got the call Friday afternoon, my stomach dropped. The nurse said it could just be a mistake, and we should bring her in for a retest the next morning. I had a diabetic friend in junior high, so I knew what sugar in the urine meant. I hoped that it was just a mistake.

Saturday we were busy getting ready for Elise's first birthday party, there was a tonne of things to do, but first we had to go to the doctor's for the repeat urine test. We went home and waited for the news. When the doc called she said it was still positive for sugar, so she was waiting to see some results from the blood they had taken the day before. Fred had a lunch to go to, so I was home by myself when the doc called and told me we needed to take her for another blood test called a hemoglobin a1c. It would show us her blood sugar levels from the past few months.

So off we went to Children's Hospital ER in Plano. The reason we went to Plano was because (our doc's reasoning) it had only been open for 3 weeks, and wouldn't be as busy as Children's downtown. It wasn't really an emergency, but there wasn't anywhere we could get blood drawn and results back so quickly.

We made it home only 10 minutes before her party was supposed to start. We were about an hour into the party when we got the call. I started to cry and could barely think straight. Our doc told us we needed to check into Children's Hospital so they could monitor Elise. Stunned doesn't even begin to describe how we were feeling.

Click here to read part 2.

Cheery Little Blog Title, isn't it?

Welcome to Death of a Pancreas. My sanity blog. A place where I can post about all the strife that goes along with having a child with diabetes, without sounding like a broken record on my other blog. Here, you know what you're going to get; All Diabetes... All the Time.

But it won't be just about the hardships. I'm hoping to post about a lot of victories too. I want this blog to be a source of encouragement to others who are walking the same treacherous road. And I'm hoping to completely abandon it one day... when they find a cure.

Oh, and if you're wondering about the address of the blog: pantsbeatsnopants.blogspot.com; it is an homage to Seinfeld where he talks about hating to go to the doctor because they always make you take your pants off. Sort of a power struggle thing. So pants always beats no pants.

I thought it quite apropos.