Comments on Death of a Pancreas: What to expect when you're pumping

so glad you wrote this, i know it will be valuable...

2012-01-11T10:35:55.003-08:00

so glad you wrote this, i know it will be valuable to new pumpers down the road!

As you know, I HATED the transition to the pump. M...

2012-01-09T14:00:31.439-08:00

As you know, I HATED the transition to the pump. M loved it right away because it gave her so much more freedom (yeah, freedom to make REALLY BAD FOOD CHOICES while unsupervised by your parents!). It has smoothed out, and we have adjusted, her A1Cs have finally gotten back to normal (for her), but I am still not entirely convinced that it is for everybody.

love it Jo, and love the note at the end. I do be...

2012-01-08T15:16:22.012-08:00

love it Jo, and love the note at the end. I do believe pumping isn't "amazing" however it is truly the best option right now for our little dude. Bravo to you for sticking it out and making it work :)

Our endo puts patients on the "poor man's...

2012-01-07T15:37:16.351-08:00

Our endo puts patients on the "poor man's pump" a basal/bolus regimen with Lantus and Novolog. You basal test, do frequent blood sugar tests, carb count, log all food. So the transition to pumping is not as difficult. Coming from NPH, I think you were faced with a stronger challenge. There are those quick highs though. They can go very high in a matter of two hours if on Apidra. I have often wondered if her control would be much better with the untethered method (where you get 80 percent of your basal through Lantus). You can then take off the pump for hours too. But she does hate the Lantus shot so we have never tried it. I'm glad to see from your last entry that you have adjusted. I know you are going to forget all about this time period like we all do, how frustrating it is. Yes, I'm sure this post will help many, I'm glad you posted this.

LOVE this post and I am so glad you left it as is....

2012-01-06T22:14:34.258-08:00

LOVE this post and I am so glad you left it as is. The honesty in it will hit home and help a new pumper I am positive. Hell it helped me and made me smile and we're going on 8 months pumping now.

3 weeks in I tweeted " I want to throw this p...

2012-01-06T21:16:08.158-08:00

3 weeks in I tweeted " I want to throw this piece of shit away!".

Granted J didn't have the ping he had....anyway...I get it. And I think this would've really helped me then!

Ps: hi. Miss you=)

Thanks for the honesty. It's not an easy trans...

2012-01-06T20:43:31.019-08:00

Thanks for the honesty. It's not an easy transition, whether it totally sucks or just sucks a little!
Glad you are loving it (now)...just know there will still be WTF moments now and then ;)

This is all so very true Joanne! And when you read...

2012-01-06T17:56:48.441-08:00

This is all so very true Joanne! And when you read this post a year from now, when you are in a different place with the pump, you will smile, cause its all a journey.

Will keep this list handy when we return to poddin...

2012-01-06T17:14:10.836-08:00

Will keep this list handy when we return to podding again! I love that Elise loves it too...that makes it all worth for sure.

How great that she loves it - that does make it al...

2012-01-06T14:59:17.947-08:00

How great that she loves it - that does make it all worth it. :) We started on a pump, and it was crazy but worth it (esp with colds & stomach bugs). It'll get easier - hopefully soon!

I'm so sorry your pump start was crazy and ups...

2012-01-06T12:58:02.422-08:00

I'm so sorry your pump start was crazy and upsetting. I'll tell you that you had me prepared for major drama, crying, deep breathing and sleepless nights when we started Ava on Omnipod two weeks ago.

As you know we started three days before Christmas and I can't tell a lie - it has been a breeze. I'm now one of the annoying people who think pumping is awesome.

Having seen the pumping "promised land", I say, "hang in there". It will get good for you guys too and then you will be annoying and happy like me.

These are all true and such a good list to let oth...

2012-01-06T12:06:24.504-08:00

These are all true and such a good list to let others know the reality of a pump. It will get better and I love my pump :)

Love this post! We started pumping in August and h...

2012-01-06T07:39:32.497-08:00

Love this post! We started pumping in August and have had the same feelings! We do love the freedoms the pump allows you but at the same time there are some constraints. We have to change the site every 2 days due to our lean little girl.
Here's to keep pumping along!

It's definitely the whole figuring out the set...

2012-01-06T06:29:20.667-08:00

It's definitely the whole figuring out the settings things that makes the whole pumping process not seem so great. We needed a lot more insulin, too, for whatever reason. Once we got the settings down, I started to see why people loved mdi. It's a lot easier now that we're somewhere close to where we need to be. Great title, btw.

Thanks for sharing. Your #1 (it will feel like st...

2012-01-06T06:22:51.429-08:00

Thanks for sharing. Your #1 (it will feel like starting all over again) and mourning the loss of a contraption free body are two big reasons I'm not ready to force the switch for Natalie (she doesn't want to yet anyway). I just dread having to go through all that when we are doing so well on shots....one day.

Thanks for the info on pricking the toes too. Oh, and about the dolphin trainer, I think I read about her on someone's blog...maybe yours?? I haven't shown Natalie the video though...will so have to do that. :-)

So, so, so true. And I have to add...even if you&#...

2012-01-06T05:58:39.195-08:00

So, so, so true. And I have to add...even if you've pumped before, switching to a new pump is like starting all over AGAIN AGAIN! I'm glad Elise likes it, though. Adam does too, and I don't have the heart to make him switch back to tubing.

BRAVO JO!!!!!! We did transition in Feb '07 w...

2012-01-05T23:40:16.848-08:00

BRAVO JO!!!!!!

We did transition in Feb '07 when our 3rd baby was due in May. I can't imagine having a 3 year CWD who would randomly lose consciousness due to low blood sugar (plus the strict schedule), a 16 month old, and a new nursing baby. I had to seize the opportunity -- thank goodness it only took about a month to see the light at the end of the tunnel!

I'm so happy you're seeing the light! Guess what?!?!?! Those 400's are going to start to go away...as long as the cannula is working (after all, a pump is only as good as the cannula under the skin!), and she's tweaked just right....it gets even better!!!!!!!

YAY YOU!

i'm sorry the transition has been so difficult...

2012-01-05T23:38:15.373-08:00

i'm sorry the transition has been so difficult for you. but i really hope things will smooth out for you soon!