tag:blogger.com,1999:blog-606637689904713685.post4603883245162141045..comments2023-10-21T04:08:58.654-07:00Comments on Death of a Pancreas: FlummoxedJoannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-606637689904713685.post-64397452371587352412009-12-18T05:09:25.443-08:002009-12-18T05:09:25.443-08:00CRAZY CRAZY... hang in there.CRAZY CRAZY... hang in there.Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-50661844976161295372009-12-17T19:58:14.218-08:002009-12-17T19:58:14.218-08:00@ Amy - Houston would be a beating to drive to... ...@ Amy - Houston would be a beating to drive to... I think it's almost 5 hours (one way) for us. With Elise's schedule it would be too hard. They would have to be AMAZING for us to make that switch.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-72303574154508496932009-12-17T17:54:35.459-08:002009-12-17T17:54:35.459-08:00I heart you!
I feel you!
I get you!
I am flummoxed...I heart you!<br />I feel you!<br />I get you!<br />I am flummoxed with you!<br /><br />I am checking into a recommended ped endo. Will let you know how it goes. You know my feeling about Children's. Love Dr. T - No love for # I feel like when I call the CDE.<br /><br />XOXOXOLaLahttps://www.blogger.com/profile/17278430665049354027noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-50251919434899127372009-12-17T15:41:19.391-08:002009-12-17T15:41:19.391-08:00It's great that she can have so much fun, even...It's great that she can have so much fun, even when her numbers are thrashing around so much.<br /><br />I usually like to crawl into a corner and hibernate.<br /><br />I was fighting lows all morning after I planned for the spike I'd seen the last three days running and it never materialized. Then I got a spike after lunch.<br /><br />My CDE is fantastic - I couldn't imagine what it would be like living with this without her guidance.Martin Jacksonhttps://www.blogger.com/profile/15016998453788275877noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-89183860194951765752009-12-17T15:34:00.251-08:002009-12-17T15:34:00.251-08:00yeah usually you get it figured out before somethi...yeah usually you get it figured out before something changes again .phoneladyhttps://www.blogger.com/profile/15941892184117571313noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-39850339326858812382009-12-17T14:33:40.251-08:002009-12-17T14:33:40.251-08:00Oh yuck....hate this stuff!!
Here's a thought...Oh yuck....hate this stuff!!<br /><br />Here's a thought....would you consider going to Houston?? Texas Children's in Houston is AMAZING!! They have a good sized team of pediatric endos and if we called the emergency line, we always got a call back from a dr. For basic adjustments, usually the CDE could walk us through it, but they were really good about talking to the dr. if needed OR having the dr. call us. I loved THEM!!! There's a reason TX Children's in Houston is rated the #4 children's hospital in the world!!! <br /><br />Just a thought....we actually considered keeping them when we moved to Tulsa, even though it would have been an 8 hour drive. We weren't incredibly impressed with our Tulsa dr.'s. <br /><br />Hang in there...you'll get it figured out!Amyhttps://www.blogger.com/profile/04842687454353803647noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-65275495847327801452009-12-17T14:12:17.346-08:002009-12-17T14:12:17.346-08:00Thanks Wendy and Meri... as for the endo thing, it...Thanks Wendy and Meri... as for the endo thing, it's not the doc, it's the CDEs. They're sort of like the gate-keepers and it's only when you make a substantial amount of noise do they let the doc know what's going on. The problem is that it's a huge practice and we're just a number to these people. I've looked at other places in our area, but all the other pediatric endo's are part of large practices.<br /><br />I'm going to see what tonight/tomorrow brings and if it's not any better, you can bet I'll start yelling.Joannehttps://www.blogger.com/profile/15030783893373288244noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-38571557227165320792009-12-17T13:57:32.868-08:002009-12-17T13:57:32.868-08:00I am at a loss. We have always had the same WONDE...I am at a loss. We have always had the same WONDERFUL endo. Whenever I call, she has the answer..and it almost ALWAYS works. She tells me why things are happening and has great ideas. Let's try this...and if this doesn't work we'll try this. She is always there for me. <br /><br />What a blessing she has been, mostly because, as you know, a baby with diabetes is a different animal. If your endo is stuck, and can't help you...and you are up night, every night...maybe you should think about shopping around for a new endo. <br /><br />You need support and help from somebody who is an expert, and knows what to do.<br /><br />I couldn't imagine calling my endo and she not being much help. It is your Endo's job to help you fix this. It has been so many long nights for you guys. I feel awful for you. That adorable dancing little girl deserves the support from a doctor who is willing and able to help her. (And her poor sleep deprived parents.)Merihttps://www.blogger.com/profile/09752883120541646427noreply@blogger.comtag:blogger.com,1999:blog-606637689904713685.post-18128712595167674452009-12-17T13:24:46.874-08:002009-12-17T13:24:46.874-08:00I'm just catching up...so sorry about these yu...I'm just catching up...so sorry about these yucky lows!!!! BLECH!!!<br /><br />I wish I had some sort of witty, clever advice.<br /><br />But...I don't.<br /><br />D sux. How about that?<br /><br />But OMGsh that sweet little angel is SO CUTE dancing her tail off in your kitchen!!!!!!Wendyhttps://www.blogger.com/profile/05977082081187891403noreply@blogger.com