Comments on Death of a Pancreas: Dexcom FAIL

BLEURGH INDEED. i have no words of wisdom since we...

2012-01-15T20:11:20.889-08:00

BLEURGH INDEED. i have no words of wisdom since we're not on the dex so i'm just her to offer support by way of saying WHY DO YOU HAVE TO BE SO UPSETTING AND FRUSTRATING, DIABETES?? we've been fighting highs here for days upon days and i'd just like to get some sleep already! anyway, here's to things leveling out asap.

Oh my! I'm sorry you're having so many lo...

2012-01-15T17:28:06.208-08:00

Oh my! I'm sorry you're having so many lows. They scare me too...no question. I hope you get it figured out soon. And enjoy a bit of quiet, before it changes again. ; )

I wonder how much has been changed by you just usi...

2012-01-14T19:08:17.622-08:00

I wonder how much has been changed by you just using one kind (one dilution) of insulin, if that may or may not have an effect on the peaks...maybe before you had a lantus peak at the same time as a fast acting insulin peak, causing those nighttime lows, but now with no lantus peak there isn't that double edge, kwim? I know that TJ has to take a snack at night to combat that trouble, regardless of the amount of tweaking he does, it is just how it works for him with MDI. Where as with Isaac he's never "needed" a nighttime snack, but rather has his highest insulin setting from 12am-2am.
I am sorry there were not tears with the Dex, but man our babes are so tough aren't they? I hope she's not getting sick and you guys are looking forward to enjoying a long holiday weekend :)

@ John K - Hi and thanks for reading and commentin...

2012-01-14T18:13:03.782-08:00

@ John K - Hi and thanks for reading and commenting! Irish people are among some of my favourite people on the planet!

We tried to put another sensor on Elise, but she wasn't having it. We had to do a pump change yesterday (as well as putting the sensor on), and TWO pump changes today due to site problems. I figured she needs a break.

Hi from Ireland. Follow your posts often. Our S is...

2012-01-14T17:39:34.635-08:00

Hi from Ireland. Follow your posts often. Our S is now 11 (18mth since dx - T1 & Coeliac). She too is very unstable but Elisa has it tough and you have my sympathies and admiration.
We use Enlite and though it drives us mad a lot, it has 'saved' us from so many lows that it's earned its place in our routine. I put one in yesterday and it bled too and just like you hadn't the heart to take it out and try again. Thankfully, it's working well.
There's little by way of advice I could give that I'm sure you already know but perhaps it might help you to know that I appreciate what you are doing for Elisa. It's difficult to find yourself in situations like these. Hang in there.
Best,
J

Brain hurting her too but with high blood sugar!! ...

2012-01-14T11:05:14.871-08:00

Brain hurting her too but with high blood sugar!! If not one it's the other. Hope bg's start hitting in range very soon!

My brain hurts over here too...we are having LOWS...

2012-01-14T10:50:11.747-08:00

My brain hurts over here too...we are having LOWS all over the place...morning and night. Elise is one SuperGirl! xoxo

When I had two in a row bleed at insertion, it did...

2012-01-14T09:58:20.193-08:00

When I had two in a row bleed at insertion, it didn't hurt at all, was just a bloody mess.
Also, I called Dexcom (during the week) and they replaced both sensors.
You're a wonderful mom and pancreas!

Poor kid! Hope the Dex didn't hurt, even thoug...

2012-01-14T09:24:49.878-08:00

Poor kid! Hope the Dex didn't hurt, even though it looked like it did. My thoughts on the highs at night are that she is insulin resistant now because she is going through a growth spurt. The highs, resistance = growth spurts for us. When growth spurt is over the sensivitity returns to normal. Years of fun ahead of you...... The lows are very scary, though. Low periods happen but a half bolus seems to me like it should do the job. I guess a quarter bolus? Recheck celiac, call endo. Frightening. Elise's D sure keeps you on your toes. These very young children.... seems like they are so challenging to manage...don't know how you do it, but I can see you are doing a great job. The only up side I see when there are extreme lows is that I see it as evidence that Faustman's theory may be correct; obviously she is getting the needed insulin; her body must be producing some.