tag:blogger.com,1999:blog-6066376899047136852024-03-05T02:54:13.643-08:00Death of a PancreasJoannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.comBlogger928125tag:blogger.com,1999:blog-606637689904713685.post-84305314465915946082022-09-12T13:00:00.001-07:002022-09-13T11:27:14.654-07:00A Thing to Remember<p><span style="font-size: medium;">Almost a decade and a half ago, I wondered what life was going to be like for my little 12 month old type 1. Now 14 years later, I have an idea. </span></p><p><span style="font-size: medium;">It's a little bit different.</span></p><p><span style="font-size: medium;">Sometimes a lot harder.</span></p><p><span style="font-size: medium;">It can be extra.</span></p><p><span style="font-size: medium;">But it seems there is not one thing this girl can't do. I don't post here anymore. I don't social media. But this. This I want to remember.</span></p><p><span style="font-size: medium;">This summer she tried out for her high school hockey team. As a goalie. Never mind that she had only been playing the position for a few months. Or that she had never really had any formal training, save for a few lessons by a guy that works at our rink. Or that she was the only girl. Or that type 1 can make playing hockey (and especially goalie) tricky at best.</span></p><p><span style="font-size: medium;">She made the team, and this weekend, had her first start. And her first shutout. And her mom almost had her first heart attack.</span></p><p><span style="font-size: medium;">I love this video. You can see all the tension leave her body at the final buzzer. Her teammates (most of whom have no idea she even has diabetes), skate up to congratulate her. You can't see her face, but she is beaming.</span></p><p><span style="font-size: medium;">It's memories like this that make the different, the harder, and the extra that much easier.</span></p><div class="separator" style="clear: both; text-align: center;"><span style="font-size: medium;"><br /></span></div><div class="separator" style="clear: both; text-align: center;"><span style="font-size: medium;"><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dwLds1BuraO6S5-YFSbvqY2adprxG74oLZsEULt5ePWLwjdtbxXJdPJRvc0xJyHPq1hQ97TC0q0m7LKI2I3SQ' class='b-hbp-video b-uploaded' frameborder='0'></iframe></span></div><p></p>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com6tag:blogger.com,1999:blog-606637689904713685.post-51507998232414540372019-02-18T18:31:00.000-08:002019-02-18T18:32:22.368-08:00Pod Hockey<div class="separator" style="clear: both; text-align: left;">
<span style="font-size: large;">I was the sister of two hockey-playing brothers. A rink rat. I spent a lot of time at ice rinks and learned quite well how to amuse myself while there.</span></div>
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<span style="font-size: large;">This little dude loves to run around the rink while sister practices. He also loves to grab a stick and stick-handle whatever he can find.</span></div>
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<span style="font-size: large;"><br /></span></div>
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<span style="font-size: large;">One practice, he couldn't find anything, so I looked through my purse until I found a lone discarded pod at the bottom. I give you...</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlYSyQVg-9y6F4un_xrWDDO_WwQTGW8JHGKtZAwXfoNDu12GE_t4Z6bbpl2oqboy27V26GPFMKqarn2KrsDuYuERZS1bvkSvy1VBtvYCz_DG7jFBTm8mOKq22BeDpvYXWTZgtXlqTi5S29/s1600/IMG_1855.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1088" data-original-width="999" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjlYSyQVg-9y6F4un_xrWDDO_WwQTGW8JHGKtZAwXfoNDu12GE_t4Z6bbpl2oqboy27V26GPFMKqarn2KrsDuYuERZS1bvkSvy1VBtvYCz_DG7jFBTm8mOKq22BeDpvYXWTZgtXlqTi5S29/s320/IMG_1855.jpeg" width="293" /></a></div>
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<span style="font-size: large;">... The Omni-puck.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com1tag:blogger.com,1999:blog-606637689904713685.post-23664275120663597842018-12-19T09:40:00.002-08:002018-12-19T09:40:59.105-08:00Let's bee it up, yo!<span style="font-size: large;">As a parent of a kid with type 1, I've had to deal with a whole range of things that don't even enter the minds of non-d parents; whether it be at a sporting event, on an airplane, or something commonplace... eating dinner at a restaurant. Sometimes I look around and wonder how much extra stuff I think about, and what it must be like to have all that extra space in my brain.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Case in point... The Spelling Bee. A milestone of consonants and vowels for every elementary student, and where dreams are crushed by a single misplaced letter.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoz-D3zEY3RH3XkD1G123jikB9DbTlQzWNHnErj8yYMk0B_3FRmA3k7fIvXdLBRBB5PidhfHFDOQmE3hZzLTcFxqJ4nQAvB8jh9AH7TZ35BNqLHB09f2X-PpQAyYPjga9QUG2MR-bX0rUr/s1600/IMG_1010.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoz-D3zEY3RH3XkD1G123jikB9DbTlQzWNHnErj8yYMk0B_3FRmA3k7fIvXdLBRBB5PidhfHFDOQmE3hZzLTcFxqJ4nQAvB8jh9AH7TZ35BNqLHB09f2X-PpQAyYPjga9QUG2MR-bX0rUr/s320/IMG_1010.jpeg" width="240" /></a></div>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Elise recently took part in her district's regional spelling bee. In Spanish. I love that my girl can spell in two languages, while I can barely manage one. It's humbling, really.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">The thing with spelling bees is that they have really strict rules when it comes to the audience. You can't make it look like you're communicating in any way. So all my pantomimes for "check your BG", "eat something!", and "do you feel okay?" would not be well-received.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Since this was her second bee, I knew to talk to the head-bee lady (queen bee... hee), explain our situation, and figure out a plan. But that doesn't make the non-stop monologue running in my head go away during the competition:</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><i>Check the CGM. Okay, 154 flat. Not bad. How much insulin on board? Crap, she just dropped by 9. Should I give her something? How much insulin on board? When did I bolus her for breakfast? 6:15? Hmmmm, should be about .75 left. How many spellers before her? <b>WHAT THE CRAP WAS <u>THAT</u> WORD? </b> What if the adrenaline kicks in? She'll be so mad if I go up there and hand her some smarties. And what if the other parents think I'm cheating?<b> I DON'T EVEN LOOK REMOTELY LIKE I SPEAK SPANISH!</b> CGM check again. Great, now she's 133. How much insulin now?<b>WHAT KIND OF LETTER IS BAY-GRANDE???</b> Did she spell it right? WAY TO GO! To give sugar or not to give? Another drop, but not so bad. Let's just wait... </i> </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I could go on, but I feel a minuscule peak inside my head is quite enough.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">You guys get it, but nobody else sees the tightrope we walk every day; every scenario can has the potential for a sucky outcome. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Don't treat, and she goes low. You have to interrupt the competition which makes her upset and throws her concentration (not to mention the low can make it hard for her too).</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Treat, but then the adrenaline kicks in, sending her even higher. She has trouble concentrating because her BG is now in the 300s.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Thankfully, that day I did nothing, and it looked like this:</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhn064LDJRsD2UyqEdRqytCIK8TfdtYLje7serp_R1l9Zu2r2Rt295dlO5rqNzT_Nnq7HWonrheUmMBXyUxpoQeJFo_BDSawbW1wFZVMeBXgtp_dRwzsaRPqdkRc59ol7-xO6ULgGnlAAfl/s1600/IMG_1014.jpeg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1198" data-original-width="751" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhn064LDJRsD2UyqEdRqytCIK8TfdtYLje7serp_R1l9Zu2r2Rt295dlO5rqNzT_Nnq7HWonrheUmMBXyUxpoQeJFo_BDSawbW1wFZVMeBXgtp_dRwzsaRPqdkRc59ol7-xO6ULgGnlAAfl/s320/IMG_1014.jpeg" width="200" /></a></div>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">It doesn't always work this way, but on spelling bee day, it did. And got her a tie for 4th out of 35 kids. And the last non-Hispanic to go out. Pretty proud of my girl! And I love it when she can do something and not even have to deal with diabetes getting in the way.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">She's pretty A-M-A-Z-I-N-G.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-75199660706496034742018-11-27T11:25:00.000-08:002018-11-27T11:25:40.975-08:00If you give a diabetic some cinnamon<span style="font-size: large;">If you give a diabetic some cinnamon,</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Chances are, she'll want some toast to put it on.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And you will have to check her blood sugar and bolus her for it.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Eating the toast will make her thirsty, so she will ask for some okra-infused water.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">When she realizes how disgusting that is, she will ask you for some avocado to clean her palate.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">All that eating will have given her lots of energy, so she will go for a long run.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">During her run, she will realize the she is right by a natural food store, so she will go inside and look around. While she is there, she will fill her cart with all sorts of superfoods.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">First she will get some smoothie mix with spirulina.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And then some hot peppers.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Finally, she will grab all the veggies she can find so she can juice them.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">When she gets home, she'll decide to relax with some essential oils.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">While relaxing, she realizes that she doesn't feel well, so she will check her blood sugar.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">When the meter shows 241, she will then give herself a bolus of insulin to bring the high blood sugar down.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Because chances are, if you give a diabetic cinnamon, okra, avocado, raw vegetable juice, hot peppers, spirulina, and essential oils... </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">She will still have type 1 diabetes.</span><br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmI5Xt7hZzVUlAnvgMUAUPQBnJOOzwfsDyQS3A-o-8pAk2OT7rIKZmlnB-ds2xN3lfWikmDqFS9WD-FqrZWzWZrKSYWYhpNATDSiEnQIUaKZ-nY8TthIp2Rt8j2Ox08k0pSTFVrNDaYfJh/s1600/IMG_0588.JPG" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" data-original-height="755" data-original-width="1600" height="187" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmI5Xt7hZzVUlAnvgMUAUPQBnJOOzwfsDyQS3A-o-8pAk2OT7rIKZmlnB-ds2xN3lfWikmDqFS9WD-FqrZWzWZrKSYWYhpNATDSiEnQIUaKZ-nY8TthIp2Rt8j2Ox08k0pSTFVrNDaYfJh/s400/IMG_0588.JPG" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not related to this post, but a cool picture of this year's walk team... 128 people!</td></tr>
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<span style="font-size: large;"><br /></span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-2730083630347732892018-09-24T07:13:00.000-07:002018-09-24T07:16:54.277-07:00Goin' low<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZzug_6EVFghiS_lX_p7gDRMYcqIq32aibn2fZhIxz0rgLhyuW-3Q2LMkbqRu6DAeTWOCadPFLlyYWBaGlZH57FHg1ZZUn-VzCCCPw6ZeA1v8T7EvIP6zkB1w85AG3ar_dtJnd5Qlyeu3Y/s1600/IMG_3344.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="1262" data-original-width="1600" height="157" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZzug_6EVFghiS_lX_p7gDRMYcqIq32aibn2fZhIxz0rgLhyuW-3Q2LMkbqRu6DAeTWOCadPFLlyYWBaGlZH57FHg1ZZUn-VzCCCPw6ZeA1v8T7EvIP6zkB1w85AG3ar_dtJnd5Qlyeu3Y/s200/IMG_3344.jpg" width="200" /></a></div>
<span style="font-size: large;">In the 10 (TEN!) years E has had type 1, we have gone through many, many different treatments for lows; bananas, smarties, skittles, starburst, glucose tabs, fruit gummies and hi chews. A lot of times, we change it up because she gets tired of always using the same old thing.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">For me, the struggle is finding something that's not filled with food dye, is portable, and is not terrible for her. One day, as I was making my weekly Costco run, I saw this cool little product upon their shelf. </span><br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkdJ0BWbD9c2b9WcW3UCMrw8rrPdAQzMsfkPwuH5ZI42OwK4zp1L6_YDqiYm5MiRjW0A9RptaBziVIn2uUcYoV5w5brJoH2OhXdLWz5yFwbDSjBHXsJYnYPrKLPFVR_C3muJEHMk_sLJuZ/s1600/NEW-Packets_Bag_Front.png" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1100" data-original-width="900" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhkdJ0BWbD9c2b9WcW3UCMrw8rrPdAQzMsfkPwuH5ZI42OwK4zp1L6_YDqiYm5MiRjW0A9RptaBziVIn2uUcYoV5w5brJoH2OhXdLWz5yFwbDSjBHXsJYnYPrKLPFVR_C3muJEHMk_sLJuZ/s200/NEW-Packets_Bag_Front.png" width="163" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">*Not actual Costco size</td></tr>
</tbody></table>
<br />
<span style="font-size: large;">When I picked it up the bag, I saw each packet had 8g of carbs... the perfect amount for E when she has a low. I had bought their honey before, so I knew she liked it.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">A few months ago, I emailed Nature Nate's about not being able to find the packets in Costco anymore. They were quick to respond, and just a few weeks ago, offered me the opportunity to become an ambassador... woo hoo!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So, now I'm sharing my love for this product with you. Even though I can't find the small packets in Costco anymore (they do still sell the giant 40 oz. bottle), they are available at my local grocery store (or on Amazon).</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Why do I love these for lows? </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">1. They bring her up QUICK!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">2. They're the perfect size... they fit in my purse, her diabetes bag, and anywhere I need to keep a stash of sugar.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">3. Perfect for overnight lows, I just rip off the top and squeeze it into her mouth. I haven't made a mess yet! And I just need to say that the fact that our T1 kiddos can eat in their sleep, never fails to amaze me.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">4. Healthier than most low treatments. No food dye, honey is natural, as well as yummy!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">5. My girl loves it!</span><br />
<span style="font-size: large;"><br /></span>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQaybvVykGeGja9GHvBL5EW3-kb5LIAyi5joyuMAz5RVwdq0VhagPE8yEq21eCKYrmV8FRoylPyGJbV8-A0XLLiY0QVcv-SBG77Qg-EYG4hjgdUEtlcUpOo4v9LstgU6WlLCGGat6Qx5MI/s1600/IMG_3340.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQaybvVykGeGja9GHvBL5EW3-kb5LIAyi5joyuMAz5RVwdq0VhagPE8yEq21eCKYrmV8FRoylPyGJbV8-A0XLLiY0QVcv-SBG77Qg-EYG4hjgdUEtlcUpOo4v9LstgU6WlLCGGat6Qx5MI/s320/IMG_3340.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Add caption</td></tr>
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<span style="font-size: large;">If you want to learn more about Nature Nate's and their story, go <a href="https://www.naturenates.com/" target="_blank">here</a>. </span><br />
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<i>***Although Nature Nate's provided me with some sweet, sweet honey, all views and opinions are mine. The funny thing is, I had a blog post in my draft folder written awhile ago about using honey for lows!</i>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com3tag:blogger.com,1999:blog-606637689904713685.post-34141205447758640152018-09-06T18:07:00.000-07:002018-09-06T18:07:10.812-07:0010 Years<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCVutOamM3q5PJvvsZeqlIX_OXqyg2EyoZRqeVj6A7cI_mnUziHIhwtOQ-KaQ2sFj9VvDPl6i5lkYg0VlaHmRZzBvFG-aaxyXYqxE8bki5W21dYGaqR9nxSq1q-7ZepOWXJVvlndsAm8Mo/s1600/IMG_7414.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCVutOamM3q5PJvvsZeqlIX_OXqyg2EyoZRqeVj6A7cI_mnUziHIhwtOQ-KaQ2sFj9VvDPl6i5lkYg0VlaHmRZzBvFG-aaxyXYqxE8bki5W21dYGaqR9nxSq1q-7ZepOWXJVvlndsAm8Mo/s400/IMG_7414.JPG" width="300" /></a></div>
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<span style="font-size: large;">Happy Diaversary to my amazing baby girl. You've come a long way, and I am so proud of you!</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-24558455211110642892018-08-24T09:25:00.001-07:002018-08-24T09:25:27.417-07:00What The Fiasp?<span style="font-size: large;">About a year and a half ago, I was hearing whisperings of this brand-new wonder-insulin... Fiasp. It was faster, smaller post-meal spikes, and it could leap tall buildings in a single bound!</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Maybe not on that last thing, but everything I had heard was great. Mind you, the sample size was rather small, due to it not being available in the U.S. Determined to try it for myself (or, my daughter), I may or may not have enlisted the help of a person related or non-related to me to bring some in from another country. It might have happened. Or it might have all been a dream. Who knows?</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Anyway, I received (or didn't) the insulin last September, but the timing was never really right to start it. I didn't want to put a brand new (to us) insulin in my daughter's pump and send her off to school not having tested it at home and not knowing what would happen. I love our nurse too much for that.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So I kept waiting for a nice, long school holiday. And then I would forget. All freaking year long. Until we hit summer break. And then it was like, <i>"hey good-lookin'! Where have you been all my life?"</i></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">The graphs! Oh my... the graphs! And all their flat-liney goodness. And hardly any post-breakfast spike. And next to no post-every-other-meal spike. Gone were the double up arrows. Instead, they were replaced by their lazy cousin, slightly up.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhztx5qwms6_v4b1_gZC0fT_gCuWcpZGVzg4forOpzCGI3_CwLqgqvjwCb_l3E5eDBhKCgGO05LJ0tI_SJ7sd0ThbJJ8gLATG8JxSmpEvDM_laJgvrI7rOVFqBiW0LMMIjjDBG0YzZaEWNh/s1600/IMG_3186.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1183" data-original-width="750" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhztx5qwms6_v4b1_gZC0fT_gCuWcpZGVzg4forOpzCGI3_CwLqgqvjwCb_l3E5eDBhKCgGO05LJ0tI_SJ7sd0ThbJJ8gLATG8JxSmpEvDM_laJgvrI7rOVFqBiW0LMMIjjDBG0YzZaEWNh/s320/IMG_3186.jpg" width="202" /></a></div>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I will point out that we have always pre-bolused. E's BG determines how much in advance we do this. On Humalog, a BG of 110 would usually need at least a 20 minute head start for a breakfast of banana, steel cut oats (with cinnamon and brown sugar), and a peanut butter protein ball (homemade). And we would still get double arrows up into the low 200s.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">These days, we see the arrow headed down about 5 minutes post-bolus. Yes, for us, it's THAT fast. We top out around 160-180, and then float back into range.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJmP_CakMciNleqnjaFV-fIMBSYOeCn2jWP47-G79Yf280wncSyvCEWdT3wdJOyfMRxaQH29-HYe-mtYPX5y5gBqaSCwVd18GXk_E5RQaap96BrpK5ZjXBHK3dUWkA_uwyoMc4UPS7Dwz3/s1600/IMG_3189.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1191" data-original-width="750" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhJmP_CakMciNleqnjaFV-fIMBSYOeCn2jWP47-G79Yf280wncSyvCEWdT3wdJOyfMRxaQH29-HYe-mtYPX5y5gBqaSCwVd18GXk_E5RQaap96BrpK5ZjXBHK3dUWkA_uwyoMc4UPS7Dwz3/s320/IMG_3189.jpg" width="201" /></a></div>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I have found Fiasp to be much more predictable than Humalog ever was for us. E is spending much more time in range, and we rarely see highs above 240, unless something went wrong. I find this insulin so much easier to "<a href="https://www.sugarsurfing.com/" target="_blank">Sugar Surf</a>" with, due to how quickly it starts working. And the highs come down so much more quickly. Gone are the "sticky highs", that require rage boluses to get them down.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And for Omnipod users, we now get the full 88 hours with this insulin; from pod change right up to the "screech of death". We NEVER got that on Humalog. Certain sites (legs, tummy), we would be lucky to get two days before her numbers would start creeping up on us.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS_rmenHI6Bi3L9YZ79Vr51OmeKDnjk7LPE3XcnxSW-Vbs78GiAPn0_Or4MkDiVJkSTJlxih6axFwRwRFYBfQmUE7YF_pjab8kNEkXFoq5BTZ1qmKxDGnLQMlUx53tEgsPZPnu6-86rrC6/s1600/IMG_3181.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1180" data-original-width="750" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgS_rmenHI6Bi3L9YZ79Vr51OmeKDnjk7LPE3XcnxSW-Vbs78GiAPn0_Or4MkDiVJkSTJlxih6axFwRwRFYBfQmUE7YF_pjab8kNEkXFoq5BTZ1qmKxDGnLQMlUx53tEgsPZPnu6-86rrC6/s320/IMG_3181.jpg" width="203" /></a></div>
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">One thing I did notice is that E has been using more insulin. Her total daily dose has gone up by 1-2 units, but that might just be a coincidence, since we started the insulin at the start of summer break, and she grew about an inch and a half in the last few months.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">For us, Fiasp works. I know not everyone has had the same experience. Also? I'm totally <b>NOT</b> a doctor. And this is <b>SO NOT</b> medical advice. </span><span style="font-size: large;">If you want to read a real review, by someone way smarter than me, check out</span><span style="font-size: medium;"> </span><span style="font-size: large;"><a href="http://integrateddiabetes.com/review-of-fiasp-insulin-and-how-it-compares-with-other-fast-insulins/" target="_blank">what Gary Scheiner has to say</a><span style="font-size: medium;">.</span></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I was also not asked to </span><span style="font-size: large;">write</span><span style="font-size: large;"> about this by anyone. It's just my two cents. And it's not even worth that.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com7tag:blogger.com,1999:blog-606637689904713685.post-67642431030562969772018-08-21T09:20:00.001-07:002018-08-21T09:22:11.552-07:00Don't Go<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQWGzdYorvMBZxIRJexQciE9YCqZcUzr_cJ3iUjJHR7udEdFh29i_7mxLdl0IslkMbpelAbw9UJBmC39s7AE4BeOXjxCjracyf5Ro4p5nPsgjutVCiQJpc6MK76FFvElG10Y2jUi-Jj-YC/s1600/DSC_0246.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1072" data-original-width="1600" height="267" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQWGzdYorvMBZxIRJexQciE9YCqZcUzr_cJ3iUjJHR7udEdFh29i_7mxLdl0IslkMbpelAbw9UJBmC39s7AE4BeOXjxCjracyf5Ro4p5nPsgjutVCiQJpc6MK76FFvElG10Y2jUi-Jj-YC/s400/DSC_0246.JPG" width="400" /></a></div>
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<span style="font-size: large;">This summer we took a trip to Vancouver. It was amazing to be back, and even better; amazing to share the place I love with my kiddos now that they're all old enough to appreciate it.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">What made my heart smile was watching Elise just be a kid. She carries such a heavy burden at times, and it's great when she can put it down and just enjoy the moment. Like the picture above; shoes off, and running down the beach with the pure joy that children only seem capable of.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">About a week ago, we had our final 504 meeting at the elementary level. To say we have been taken care of and had every need met by our school and district, would be a vast understatement. At school, we know that she is loved and safe. During the meeting, we talked a bit about the transition into middle school, and for some reason this picture above came to mind.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">To me, middle school is growing up. It's older kids and mean girls. It's responsibility and pressure. Chaos. Too many teachers and too easy to get lost. It scares me.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">The other day, as we were getting ready for a dex change she started to cry. "Mama," she said, "what will happen to me when I'm older and have to do all this by myself? What if I can't do it?"</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Let me interject that she does a great deal of it on her own as it is; pump changes, carb counting, finger poking and bolusing. As her dex goes on the back of her arm, that can be a bit tricky.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">As we talked and I reminded her how far she has come, the tears slowed and a smile slowly crept back onto her face. The moment passed, dex was changed, and she ran off to play with her lego.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Because for now, she's still a child, like the one in the photo. Next year will bring what it will. And we will be ready.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com1tag:blogger.com,1999:blog-606637689904713685.post-78276695697709176332018-07-22T20:31:00.000-07:002018-07-23T09:34:31.068-07:00Why I should not be living in Texas<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbne16QtkD5lmb3RwITAPyQ2CgypuYY1pctU07RcmoI3yFCDj4s75PciMewrfPyyuolw2s7caa94yuvcUK7lsVsqbcu2qvLlYWdcqU0NrqMWCogd36Ae4Jh-4IPIdD1cokkEU4S9rupecN/s1600/IMG_3206.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1169" data-original-width="737" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhbne16QtkD5lmb3RwITAPyQ2CgypuYY1pctU07RcmoI3yFCDj4s75PciMewrfPyyuolw2s7caa94yuvcUK7lsVsqbcu2qvLlYWdcqU0NrqMWCogd36Ae4Jh-4IPIdD1cokkEU4S9rupecN/s320/IMG_3206.jpg" width="201" /></a></div>
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<span style="font-size: large;">When your kid with type 1 gets invited to a party at a splash pad in 105 degree heat... this is what happens. Yes, it came down... but it took a pod change and shot to do that. The pod we had just changed the night before was rendered useless.</span><br />
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<span style="font-size: large;">Go home, Texas Summer... you suck. I don't want to play with you anymore.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-52121152840010406342018-07-02T10:00:00.000-07:002018-07-02T10:02:00.440-07:00Happy 151st Birthday Canada!<div class="separator" style="clear: both; text-align: center;">
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<span class="Apple-style-span" style="font-size: large;"><a href="http://miscellaneoust.blogspot.com/search/label/Happy%20Canada%20Day" target="_blank">It all started</a> with a simple <a href="http://miscellaneoust.blogspot.com/2008/07/happy-141st-birthday-canada.html" target="_blank">picture of my 10 month old daughter holding a Canadian flag</a>. Now 8 years later, all 3 of my kids proudly wave the maple leaf on Canada Day. </span></div>
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C-A-N-A-D-A,</div>
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Tell me what’s a Douglas Fir </div>
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C-A-N-A-D-A,</div>
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Betcha never heard a bobcat purr</div>
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C-A-N-A-D-A,</div>
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Have you ever seen a lobster crawl?</div>
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<span class="Apple-style-span" style="font-family: inherit;">In Canada, we get to see them all.</span></div>
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<i>We get to see the maple trees, maple sugar and the maple leaves,</i></div>
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<i>We got the biggest wheat fields growing tall</i></div>
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<i>In C-A-N-A-D-A, where we see the reversing falls</i></div>
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<i>In Canada, we get to see them all.</i></div>
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<span class="Apple-style-span" style="font-family: inherit; font-size: 12px;"><i>C-A-N-A-D-A,</i></span></div>
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<i><span class="Apple-style-span" style="font-family: inherit;">Tell me, what’s a tidal bore,</span></i></div>
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<i style="color: black; font-size: 12px;">C-A-N-A-D-A,</i></div>
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<i><span class="Apple-style-span" style="font-family: inherit;"><br />Have you ever heard the ocean roar?</span><br /><br />C-A-N-A-D-A,</i></div>
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<i>Just listen to that wild goose call.</i><br />
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<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">In Canada, we get to see them all</span></i></div>
<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;"><br /></span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">We get to see the maple trees, maple sugar and the maple leaves,</span></i></div>
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<span class="Apple-style-span" style="font-family: inherit;"><i><span class="Apple-style-span" style="font-size: 12px;">We got the biggest timber woods so tall</span></i><i><span class="Apple-style-span" style="font-size: 12px;"> </span></i></span></div>
<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-size: 12px;"><span class="Apple-style-span" style="font-family: inherit;">In C-A-N-A-D-A, where adventure ever calls,</span></span></i></div>
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<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-size: 12px;"><span class="Apple-style-span" style="font-family: inherit;">In Canada, we get to see them all.</span></span></i></div>
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<i>C-A-N-A-D-A,</i></div>
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<i>Have you ever heard a maple creak?</i></div>
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<i style="font-size: 12px; text-transform: none;">C-A-N-A-D-A,</i></div>
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<i style="font-size: 12px; text-transform: none;">Betcha never seen a mountain peak.</i></div>
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<span class="Apple-style-span" style="font-size: small;"><i style="font-size: 12px; text-transform: none;">C-A-N-A-D-A,</i></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="font-size: small;"><i style="font-size: 12px; text-transform: none;">In the land of the big snowball.</i></span></div>
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<i><span class="Apple-style-span" style="font-size: 12px;"><i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">In Canada, we get to see them all.</span></i></span></i></div>
<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">We get to see the maple trees, maple sugar and the maple leaves,</span></i></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="font-family: inherit;"><i><span class="Apple-style-span" style="font-size: 12px;">We got the biggest wheat fields growing tall</span></i></span></div>
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</span>
<br />
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<span class="Apple-style-span" style="font-family: inherit;"><i><span class="Apple-style-span" style="font-size: 12px;">In C-A-N-A-D-A, where we see the reversing falls,</span></i></span></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="font-family: inherit;"><i><span class="Apple-style-span" style="font-size: 12px;">In Canada, we get to see them all.</span></i></span></div>
<span class="Apple-style-span" style="font-family: inherit;"><i>
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<i><span class="Apple-style-span" style="font-family: inherit;">C-A-N-A-D-A,</span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit;">Have you ever seen a magnetic hill?</span></i> </div>
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<i><span class="Apple-style-span" style="font-family: inherit;"><br />C-A-N-A-D-A,</span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit;">Or a lady on a dollar bill?</span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit;">C-A-N-A-D-A,</span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit;">Betcha never seen the autumn fall.</span></i></div>
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<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">We get to see the maple trees, maple sugar and the maple leaves,</span></i></div>
<div style="text-align: center;">
<span class="Apple-style-span" style="font-family: inherit;"><i><span class="Apple-style-span" style="font-size: 12px;">We got the biggest timber woods so tall</span></i><i><span class="Apple-style-span" style="font-size: 12px;"><br /> </span></i></span></div>
<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">In C-A-N-A-D-A, where adventure ever calls,</span></i></div>
<div>
<div style="text-align: center;">
<i><span class="Apple-style-span" style="font-family: inherit; font-size: 12px;">In Canada, we get to see them all.</span></i></div>
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<i><span 12px="" class="Apple-style-span" font-size:="" grande="" helvetica="" ms="" rebuchet="" sans-serif="" sans="" style="font-size: x-small;" ucida="" unicode="" verdana="">*Lyrics from the song C-A-N-A-D-A by Raffi</span></i><br />
<i><span 12px="" class="Apple-style-span" font-size:="" grande="" helvetica="" ms="" rebuchet="" sans-serif="" sans="" style="font-size: x-small;" ucida="" unicode="" verdana=""><br /></span></i>
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<span 12px="" class="Apple-style-span" font-size:="" grande="" helvetica="" ms="" rebuchet="" sans-serif="" sans="" style="font-size: large;" ucida="" unicode="" verdana="">Happy Canada Day to all my Canadian peeps out there. </span></div>
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<span class="Apple-style-span" style="color: white; font-family: "lucida grande" , "lucida sans unicode" , "trebuchet ms" , "verdana" , "helvetica" , sans-serif;"><span class="Apple-style-span" style="font-size: 12px;"><i><br /></i></span></span>
<span class="Apple-style-span" style="color: white; font-family: "lucida grande" , "lucida sans unicode" , "trebuchet ms" , "verdana" , "helvetica" , sans-serif;"><span class="Apple-style-span" style="font-size: 12px;"><i>Ittt</i></span></span></div>
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Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-67693433995697219382018-06-05T14:27:00.000-07:002018-06-05T16:20:30.772-07:00And that's what it's all about<div class="separator" style="clear: both;">
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<span style="font-size: large;">I found these shots as I looked through all the professional FFL pictures from a few summers ago. I remember the situation well...</span></div>
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<span style="font-size: large;">Dexcom sponsors a movie event at FFL. We were sitting outside the doors to the movie room, waiting to be let in, when Elise realized she couldn't find her favourite stuffed bear, Pinky.</span></div>
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<span style="font-size: large;">As Elise sobbed silently, her BFFL, H, put her arm around Elise and comforted her as she wept.</span></div>
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<span style="font-size: large;">All was well in the end. Pinky was found hiding in a comforter in our room, and the movie was enjoyed by all.</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzMVxT-4G42pyfaecOgtq2vH9rC_RaeJN-eQUSkRSismlCF4_2UOGFwjSWWSsaByvluhxjUdmKeVclZFG1oFTdtbFTwXqY9A7oBlrbMbJrcaRYZWQOy82dlcTsWa2XDVzJ-O9lQ7QoyPHA/s640/blogger-image-321576705.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir5MgY1CQr3iPQTeApA7r9K8MF2IkQy4tXDdvExZrVRHFHcT20phKvk9n0kwOq551-rNfN3zSpDNHxy5VBV3tznlAQCL-A7rbL2PybPX7AMyFIRdBq_QotFK97v4KvXFLWovGUHxK5BQG_/s640/blogger-image--1432402276.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="267" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEir5MgY1CQr3iPQTeApA7r9K8MF2IkQy4tXDdvExZrVRHFHcT20phKvk9n0kwOq551-rNfN3zSpDNHxy5VBV3tznlAQCL-A7rbL2PybPX7AMyFIRdBq_QotFK97v4KvXFLWovGUHxK5BQG_/s400/blogger-image--1432402276.jpg" width="400" /></a><br />
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<span style="font-size: large;">And that's what FFL is all about. Thank you H, for being such a good FFL to Elise!</span></div>
Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com1tag:blogger.com,1999:blog-606637689904713685.post-64351096875730601612018-04-05T14:45:00.001-07:002018-04-05T14:46:37.743-07:00Carb Shark<span style="font-size: large;">A few months ago, at a Valentine's party at Elise's school, I helped a mom of a newly diagnosed kid in kinder count the carbs in her sundae. A sundae laden with sprinkles, whipped cream, gummy bears, and other treats I can't remember.</span><br />
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<span style="font-size: large;">One glance had me swagging for 40g. The mom practically swooned at my speed and apparent accuracy. </span><br />
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<span style="font-size: large;">Or maybe I'm remembering it wrong. Anyway, in that moment I knew what rockstars must feel like.</span><br />
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<span style="font-size: large;">Her daughter was in-range the rest of the day.</span><br />
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<span style="font-size: large;">Now I'm the freaking Rainman of carb counting.</span><br />
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<span style="font-size: large;">Too bad it won't make me any money in Vegas.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-35469263879140251352018-03-11T17:40:00.000-07:002018-03-11T17:40:19.803-07:00When you're high and you really want to eat dinner<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhZEYBEXV2nOwGHC8uFvChlVfg5qjSQBNiS_XYoHoBhYaHsEDTi-XulxNh76kxaFBlnY16sLG9fwmbNiF9H5Ho4fxvEtDv3ULF_4bzer9aVKHtb9wolU5s_kJ0x_xrKufpvqTj800GR0J1/s1600/IMG_1808.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjhZEYBEXV2nOwGHC8uFvChlVfg5qjSQBNiS_XYoHoBhYaHsEDTi-XulxNh76kxaFBlnY16sLG9fwmbNiF9H5Ho4fxvEtDv3ULF_4bzer9aVKHtb9wolU5s_kJ0x_xrKufpvqTj800GR0J1/s640/IMG_1808.JPG" width="480" /></a></div>
<br />Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com0tag:blogger.com,1999:blog-606637689904713685.post-53816802561844188782018-03-06T14:03:00.000-08:002018-03-06T14:08:16.556-08:00A diabetes Lucas-ism<span style="font-size: large;">Sometimes on<a href="http://miscellaneoust.blogspot.com/" target="_blank"> my other blog</a>, I'll post funny things the kids say. I figured this one belonged here.</span><br />
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<span style="font-size: large;">I was in the kitchen using rubbing alcohol to clean some gunk off of toys that I was getting ready to garage sale.</span><br />
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<span style="font-size: large;">Lucas walks in, wrinkles his nose and says, "why does it smell like diabetes in here?"</span><br />
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<span style="font-size: large;">Man, he's cute.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrAJeb1gHnMeS1vKrEmGb_h5WjBVCkiz42nqAhf1z3FySS0Lh4FaF1DMqzsEABR7hTr6BufnP_EA4NupzXh2tQ_c1mWiFnxqhvHowAHTGedS45sZj-atO6MHvsWd2XoQWydSRPgmOW357j/s1600/IMG_0708.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrAJeb1gHnMeS1vKrEmGb_h5WjBVCkiz42nqAhf1z3FySS0Lh4FaF1DMqzsEABR7hTr6BufnP_EA4NupzXh2tQ_c1mWiFnxqhvHowAHTGedS45sZj-atO6MHvsWd2XoQWydSRPgmOW357j/s320/IMG_0708.JPG" width="240" /></a></div>
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<br />Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com0tag:blogger.com,1999:blog-606637689904713685.post-53589631889164778762018-03-01T15:22:00.000-08:002018-03-01T15:22:21.435-08:00These days<span style="font-size: large;">It's been awhile, hasn't it? So sorry... it's not you, it's me.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Actually, if I'm being truthful, it's life. Life is screaming by and I'm powerless to stop it. The other day I received this email from a photo storage website:</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfMzp-j3A-cgiU7ITCoBnY6AZkJhDUJYdZm4AlTygXoYZHvgWzIJh0yXMIc3GmoAD46_-XfgRozNwm51MY199uqUnvgR8aE0EOK7GqXPyzOL_wa3spARplio7aN-LOEt-ZcGTDZhJWi2am/s1600/Image-1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="1334" data-original-width="750" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfMzp-j3A-cgiU7ITCoBnY6AZkJhDUJYdZm4AlTygXoYZHvgWzIJh0yXMIc3GmoAD46_-XfgRozNwm51MY199uqUnvgR8aE0EOK7GqXPyzOL_wa3spARplio7aN-LOEt-ZcGTDZhJWi2am/s320/Image-1.jpg" width="179" /></a></div>
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<span style="font-size: large;">"Joanne," it said, "Check out these memories from <b>6 years ago!!!</b>" (emphasis mine).</span></div>
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<span style="font-size: large;">"No." Said I. "There has been a mistake. That cannot be 6 years ago... they still look exactly like that."</span></div>
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<span style="font-size: large;">And to prove my point, I peered over my phone to look at my tiny people. </span></div>
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<span style="font-size: large;">And found that I was wrong. Also, one of my kids wasn't even born yet when those pictures were taken, so as well as getting older, it seems I'm getting dumber.</span></div>
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<span style="font-size: large;">I have now been fake pancreas-ing for almost 10 years. Some days it feels so easy, that I could do it in my sleep (or it feels like I'm sleeping because of the sheer lack of it).</span></div>
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<span style="font-size: large;">Other days I want to lie down and cry from the enormity of it all.</span></div>
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<span style="font-size: large;">But mostly it just feels like life, these days. Something that's shoved in there with grocery shopping, and laundry, school and sports. It's present, but not everything, like it was so long ago.</span></div>
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<span style="font-size: large;">These days, I've been asking myself where the time has gone?</span></div>
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<span style="font-size: large;">When did she become so independent? This past summer, Elise started doing her own pod changes and making and bolusing for her breakfast in the mornings. Without any prompting, at the age of 9.</span></div>
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<span style="font-size: large;">There are still days when she wants Fred or I to do it for her. But these days, I'm not needed so much anymore.</span></div>
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<span style="font-size: large;">And when I compare it to the relentless and complete dependence... I honestly don't know which I prefer.</span></div>
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<span style="font-size: large;">There used to be dance, and gymnastics, and pre-school, and soccer, and all the things that scared me to death.</span></div>
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<span style="font-size: large;">These days, there's still soccer, but there's also hockey, and orchestra, and choir, and acting classes and sleepovers.</span></div>
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<span style="font-size: large;">These days there is technology, that I am so thankful for. Because it makes all the things of these days easier to say yes to.</span></div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjX128oH8rKM2O80aoQmobpmtUnOcaDK0Z9sngUaRgIjWGM8O7Yg7kx9nBAqWoBuzLbv6Dzg0o-UEhaZhe_e8z8jr46DTdC0ZA-HD3_0abNA_gDNW6IIWywdfQ1DfPrdCC8RH0hWq6aODTj/s1600/IMG_1737.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" data-original-height="1600" data-original-width="1200" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjX128oH8rKM2O80aoQmobpmtUnOcaDK0Z9sngUaRgIjWGM8O7Yg7kx9nBAqWoBuzLbv6Dzg0o-UEhaZhe_e8z8jr46DTdC0ZA-HD3_0abNA_gDNW6IIWywdfQ1DfPrdCC8RH0hWq6aODTj/s320/IMG_1737.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This picture makes me happy</td></tr>
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<span style="font-size: large;">So yeah... here I sit, in the in-between. It's a weird place to be. I have missed blogging, and what this blog has brought me. Hopefully there's still some of you out there. I think it's you that I've missed most of all.</span></div>
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Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com4tag:blogger.com,1999:blog-606637689904713685.post-11329362833244426132017-05-19T05:01:00.000-07:002017-05-19T05:01:57.362-07:00The Storyteller<a href="http://www.bittersweetdiabetes.com/2017/05/diabetes-blog-week.html"><img border="0" height="65" src="https://c2.staticflickr.com/4/3939/33789629371_813958636e_o.gif" width="400" /></a><br />
<span style="font-size: large;"><b><br /></b></span><span style="font-size: large;"><b>DBlog week - Day 5</b></span><br />
<span style="font-size: large;"><b>More than Diabetes- </b></span><i>Lets wrap up the week by sharing a little more about ourselves, beyond the chronic illness we or our loved ones live with. Share an interest, hobby, passion, something that is YOU. If you want to explore how it relates to or helps with diabetes you can. Or let it be a part of you that is completely separate from diabetes, because there is more to life than just diabetes!
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<span style="font-size: large;">This is not my story. For now, I am merely the storyteller. It is my hope that one day Elise will want to take my place, and continue what I started. If she doesn't, no big deal. What I do love, is that she is already following in my footsteps of being a storyteller.</span><br />
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<span style="font-size: large;">My girl is a published author.</span><br />
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<span style="font-size: large;">At the age of 9 (she was 8 when she wrote it), Elise published her first book; called The Mouse Who Ate the Moon. It's a children's story about a hungry mouse and what happens to the moon during a lunar eclipse.</span><br />
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<span style="font-size: large;">So far, she has done numerous readings at schools and libraries. She has also had one book signing, with two more scheduled.</span><br />
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcXzbvD1TQ2S3F0TRBOS7eAWrddZiB2I2bP-SWWVkt07XmeuJZ7C5rbfNmfz2W4uDvbCrH30vgm1Nl-u6jxofCyjqlAqurJmawc-F4jkQVtjmv-BwUeYnsqGPYU5OtrvqNqz4oLhNYU59W/s640/blogger-image-1001803172.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcXzbvD1TQ2S3F0TRBOS7eAWrddZiB2I2bP-SWWVkt07XmeuJZ7C5rbfNmfz2W4uDvbCrH30vgm1Nl-u6jxofCyjqlAqurJmawc-F4jkQVtjmv-BwUeYnsqGPYU5OtrvqNqz4oLhNYU59W/s640/blogger-image-1001803172.jpg" /></a></span></div>
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<span style="font-size: large;">There is so much more to this girl than diabetes. She is a big sister. Soccer player. Voracious reader. Best friend. Daughter. Lover of all things Star Wars and Harry Potter. Singer. Loves to sew. On her way to being trilingual.</span><br />
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<span style="font-size: large;">And now, published author. In TWO languages (English and Portuguese).</span><br />
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<span style="font-size: large;">If you're interested, you can buy Elise's book <a href="http://www.themousewhoatethemoon.com/" target="_blank">here</a>. If you're local, we have a book signing on June 3rd, at 1:00 pm. Just leave a comment and I can give you the details.</span><br />
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<span style="font-size: large;">Love this girl... she inspires me so.</span><br />
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<i><br /></i>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com4tag:blogger.com,1999:blog-606637689904713685.post-60217375268372414882017-05-18T08:09:00.001-07:002017-05-18T08:09:16.850-07:00I am Crazy Slowly Going<a href="http://www.bittersweetdiabetes.com/2017/05/diabetes-blog-week.html"><img border="0" height="65" src="https://c2.staticflickr.com/4/3939/33789629371_813958636e_o.gif" width="400" /></a><br />
<span style="font-size: large;"><b><br /></b></span><span style="font-size: large;"><b>DBlog week - Day 4</b></span><br />
<span style="font-size: large;"><b>What brings me down- </b></span><i>Today let’s revisit a prompt from 2014 - May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope?</i><br />
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<i>***I'm phoning it in today, and using my post from 2014. With a few changes.***</i><br />
<span style="font-size: large;"><br /></span><span style="font-size: large;">I often joke that when I gave birth to my kids, most of my brain must of come out too, because I think I've become dumber with each child I've birthed.</span><br />
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<span style="font-size: large;">Add diabetes to the mix and it's amazing that I remember to dress myself before I walk out the door. Mentally, I am exhausted.</span><br />
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<span style="font-size: large;">Over the past five years, diabetes has become increasingly frustrating. Elise doesn't follow trends. She requires very little insulin most days her TDD is about 15 units (she usually eats 50-100g per meal). She goes through periods where we don't bolus her for meals. Or only bolus by half. We've never been able to bolus her fully for her dinner. We do it manually over a period of five hours. </span><br />
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<span style="font-size: large;">And then there are the times she's high no matter how much insulin we dump into her.</span><br />
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<span style="font-size: large;">Mentally, it's exhausting. It's like an enigma, wrapped in a paradox, stuck inside a conundrum.</span><br />
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<span style="font-size: large;">Or something.</span><br />
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<span style="font-size: large;">I don't really have any sage advice on how to deal. My method is to rant and rage (to my husband, a friend, my blog, or an empty room).</span><br />
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<span style="font-size: large;">I play soccer. Like, <i>a lot</i> of soccer. Some weeks I have 4 games. Win or lose, soccer makes me smile, and takes me back to my younger days... when I was actually good at something.</span><br />
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<span style="font-size: large;">I remember all that I'm thankful for; especially that my daughter is here in my arms. It could be so much worse.</span><br />
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<span style="font-size: large;">And then I go to Target. Because Target is always good for all that ails you.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com8tag:blogger.com,1999:blog-606637689904713685.post-28273021208180118582017-05-17T07:12:00.001-07:002017-05-17T07:12:38.622-07:00Here are my shoes. Take a walk in them<a href="http://www.bittersweetdiabetes.com/2017/05/diabetes-blog-week.html"><img border="0" height="65" src="https://c2.staticflickr.com/4/3939/33789629371_813958636e_o.gif" width="400" /></a><br />
<span style="font-size: large;"><b><br /></b></span><span style="font-size: large;"><b>DBlog week - Day 3</b></span><br />
<span style="font-size: large;"><b>The Blame Game- </b></span><i>Having diabetes often makes a visit to the doctor a dreaded experience, as there is invariably bad news of one kind or another. And sometimes the way the doctor talks to you can leave you feeling like you’re at fault. Or maybe you have a fantastic healthcare team, but have experienced blame and judgment from someone else in your life – friend, loved one, complete stranger. Think about a particularly bad instance, how that person talked to you, the words they used and the conversation you had. Now, the game part. Let’s turn this around. If you could turn that person into a puppet, what would you have them say that would leave you feeling empowered and good about yourself? Let’s help teach people how to support us, rather than blame us!
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<span style="font-size: large;">Just recently, I was out for dinner with a friend. She kept asking me questions about why Fred and I don't go out on date nights. Or why when my mom comes to visit, I don't leave the kids with her and get out of town for a few days with Fred.</span><br />
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<span style="font-size: large;">If you didn't read <a href="http://www.deathofapancreas.com/2017/05/expecting-unexpected.html" target="_blank">my first post</a> for Dblog week, I'll sum it up... Elise's blood sugars are wonky after dinner. Just plain awful. They follow no trend, and every night is different. For example, a few nights ago she had 125g of carbs for dinner. I started off bolusing her for 40g. And that's all she needed, for the rest of the night. She stayed right in the low 100s.</span><br />
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<span style="font-size: large;">Until 3 am, when she was 300+. A full 9 hours after she ate. And no, it wasn't pizza.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">A few nights before that, I bolused her for about 1/3 of her meal, because she was going to a 90 minute soccer practice. She ended up almost 400.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I had only bolused for 1/3, because the night before that, I bolused for 40g of an 90g meal. We went to her brother's soccer practice where she sat an played with some kids. She tanked to 52 and stayed there despite 30g of carbs.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Do you see what I'm dealing with?</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">If it's extremely difficult for me to deal with (and I've been doing this for close to 9 years), how can I expect someone who has little to no experience to handle it? The times Fred and I have left her, we spend the entire time texting or on the phone trying to handle it from afar.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">When my friend said, "I just hope this isn't an excuse you're using", I wanted to scream. She didn't say it in a mean way, it just showed me that I can try and explain until I am blue in the face, and they won't get it.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">It's exhausting. It's demoralizing. It makes me angry. I feel stupid, because I. Can't. Fix. It. I've tried and failed more times than I can count. Sugar Surfing helps, but not every time. The endo can't even figure it out. You don't think I want to go on vacation with my husband (and no kids)? Fred and I haven't had quality alone time since before Elise was born.. You don't think that's hard on a marriage? It sucks. All of it. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">My friends have seen me struggle, and they don't understand.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">As far as turning it around... I don't know what I want them to say. Because they don't get it. They never will.</span><br />
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<i>This post was written after another hard night. It's not always this difficult, but lately it has been. And this post reflects that.</i>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com3tag:blogger.com,1999:blog-606637689904713685.post-3612603060962928612017-05-16T08:03:00.000-07:002017-05-16T08:03:36.552-07:00The Other Costs of Diabetes<a href="http://www.bittersweetdiabetes.com/2017/05/diabetes-blog-week.html"><img border="0" height="65" src="https://c2.staticflickr.com/4/3939/33789629371_813958636e_o.gif" width="400" /></a><br />
<span style="font-size: large;"><b><br /></b></span><span style="font-size: large;"><b>DBlog week - Day 2</b></span><br />
<span style="font-size: large;"><b>The Cost of a Chronic Illness- </b></span><i>Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care?</i><br />
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<span style="font-size: large;">My friends are always astounded at just how much it costs to keep Elise alive. I don't share it with many people, but there are times I get worked up about the cost of insulin, which makes them curious as to how much a vial of insulin costs.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">After they goe over their inital shock, they always ask, "WHY?" Which leads to a rant about pharmacutical companies, insurance companies, and how the whole THE WHOLE DAMN SYSTEM IS BROKEN.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">At which point, the friend is sorry they ever aksed.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">But as broken as it is, my family is lucky to have good health insurance. It's still not cheap, but we can afford what we need. Even to so-called "extras" like a CGM. And we have access to all the latest and greatest technology.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">But, as some of you know, my husband and I are not from the U.S. And some days we dream of moving to another country, just for a new experience.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And, if I'm being completely honest, diabetes gives us (well, me) pause. Because there are so many "what ifs" when it comes to diabetes. What is we can't get the supplies we're used to? And how expensive are the "extras". What if the standard of care is not what we expect? What if it's even harder to get what we need than it is now? </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Because, like water flowing down a hill, I would much rather take the path of least resistance. Living here is not bad, but it IS known. And therefore, not scary.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">The unknown for me? Very scary.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I can't heap all of the blame onto diabetes. It gets trickier when there are kids involved. Our older two are in a great school; where they're involved in a wonderful GT program, dual language and STEM. Not to mention we have the BEST school nurse in the world.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So here we stay. Provided for and comfortable. Happy, even. But still curious to what the rest of the world could hold if diabetes was not a part of our world.</span><br />
<span style="font-size: large;"><br /></span>
<i>I just wanted to add that I get the whole "don't let diabetes stop you from doing anything" thing. I just wanted to be honest about who I am, and how sometimes, diabetes can make it easy for me to say no. I'm getting better... Elise has been to two (!!!) sleepovers in the last few months. I'm doing my best, despite the fear, to not let diabetes rob her of any experiences. It's a constant battle, friends.</i>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com3tag:blogger.com,1999:blog-606637689904713685.post-52183463122341117022017-05-15T08:39:00.001-07:002017-05-15T12:04:53.308-07:00Expecting the Unexpected<a href="http://www.bittersweetdiabetes.com/2017/05/diabetes-blog-week.html"><img border="0" height="65" src="https://c2.staticflickr.com/4/3939/33789629371_813958636e_o.gif" width="400" /></a>
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<span style="font-size: large;"><b>DBlog week - Day 1</b></span><br />
<span style="font-size: large;"><b>Diabetes and the Unexpected- </b></span><i>Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected? </i><br />
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<span style="font-size: large;">Elise has always had dinnertime issues. Even back when she was on shots, dinnertime was difficult. Her problem is this; give her all her dinnertime insulin in one bolus (no matter what she's eating), and she goes low. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">When she was on shots, as long as we gave her diluted insulin at dinner (u-50), it was fine. But now that she's on a pump, we have to just watch her CGM and bolus as needed. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">It's exhausting.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">The hardest part is that it's not always the same. There are rare nights when she needs everything up front. Sometimes it only takes a few hours. And sometimes, it can take up to 5 hours to dole out her dinnertime insulin in little micro-boluses. And if I slip up and get distracted, it can get ugly.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And yes, I have messed with I:C ratios, basals, and extended boluses. Nothing works. Except watching. And bolusing.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">We've been doing this as long as Elise has been on the pump. Unbeknownst to me up until a few years ago, this is actually a thing. It's called <a href="http://www.sugarsurfing.com/" target="_blank">Sugar Surfing</a>.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZzq2ZtEnPHCLV6MGGOtxcZB04FM8FjKzwXMfl_LPuLusfacRR2AgsZTJ6q9vfx5isLRfUJxWB4tGHYQjvYM-iTx02eX8Xh3hXYS0SB7E1CJW1sSuRd4GmiO-8f12HeY_orG6DlY88d0V5/s1600/sugarsurfing.jpeg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZzq2ZtEnPHCLV6MGGOtxcZB04FM8FjKzwXMfl_LPuLusfacRR2AgsZTJ6q9vfx5isLRfUJxWB4tGHYQjvYM-iTx02eX8Xh3hXYS0SB7E1CJW1sSuRd4GmiO-8f12HeY_orG6DlY88d0V5/s200/sugarsurfing.jpeg" width="144" /></a></div>
<span style="font-size: large;">Dr. Stephen Ponder (a pediatric Endo, and T1) has written a great book about it, and also has a Sugar Surfing talk that he gives.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Reading his book, and going to his talk (twice), has helped me fine-tune my evening sugar surfing.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;"><i>As an aside, Dr. Ponder is going to be at FFL this year! Make sure you check him out... his talk is engaging, funny, and full of great tips! I might even go for a three-peat!</i></span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I may not have an answer to why Elise absorbs her food more slowly at dinnertime, but I am thankful that through some (or a lot) of trial and error, I've found something that somewhat works for us.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And that seems to be how you do it with diabetes. Keep trying stuff until you figure it out.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And learn to expect the unexpected.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com9tag:blogger.com,1999:blog-606637689904713685.post-7602079520195396802016-11-14T06:42:00.002-08:002016-11-14T17:03:54.282-08:00Today<div class="separator" style="clear: both; text-align: center;">
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<i>***This is a re-post of a blog I wrote 4 years ago. It's just as true today as it was then.</i><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-ZEvG1sNyplWSM33rOkRlXoc0tbx_zYZa60Loc0wS8i9iVyWNOlkG8SS-wNZYhqaI06mve0R_0kZ6wbJJ8LVK9CkG2T_7vTipM9JaGjdM6eHwT97C36AmahOodg6yylk2MRtUQ1eYvS8T/s640/blogger-image-220266017.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-ZEvG1sNyplWSM33rOkRlXoc0tbx_zYZa60Loc0wS8i9iVyWNOlkG8SS-wNZYhqaI06mve0R_0kZ6wbJJ8LVK9CkG2T_7vTipM9JaGjdM6eHwT97C36AmahOodg6yylk2MRtUQ1eYvS8T/s640/blogger-image-220266017.jpg" /></a></div>
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<span style="font-size: medium;">This is my daughter, Elise. She is 9 years old. She loves to play soccer. Paint and draw. Read. She loves to dance and sing. Making her little brothers laugh. The colour green. Roller-coasters and waterslides. This Halloween she dressed up as Hermoine from Harry Potter. She's a girly-girl with a tough side... the absolute best of both worlds. </span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrHCK6v9iX79UFxSLF4n5NLjBlw4mmDRw-U3KIpCBaMjpijfoVdV2rIyGwjPQ4V5gk7iD1ZhexiQ7h6MGOAOwMspNbM02k88yb5eO-NPR2dPF8K4BMeGjHgvJY642klIlFMENjBG2GSEyS/s1600/www.tressavent.com-LCG-JDRF+Session-June+2012-10.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrHCK6v9iX79UFxSLF4n5NLjBlw4mmDRw-U3KIpCBaMjpijfoVdV2rIyGwjPQ4V5gk7iD1ZhexiQ7h6MGOAOwMspNbM02k88yb5eO-NPR2dPF8K4BMeGjHgvJY642klIlFMENjBG2GSEyS/s320/www.tressavent.com-LCG-JDRF+Session-June+2012-10.jpg" width="228" /></a><br />
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<span style="font-size: medium;">She makes me laugh. Loves everyone she's ever met. Blows me away with how smart she is. She has the innate ability to drive me bananas, but at the same time; I am so very proud the be her Mom. And today, she makes me thankful.</span><br />
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<span style="font-size: medium;">Without today, Elise would not be alive. If it wasn't for today, I would have had to say goodbye to my first-born over 8 years ago. If today had never happened, this would be one of the last pictures I have of my daughter...</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpqHtt5Iq8HxrYdMFnFW2g5i2fpPTHqT-1DYYaU7gauG-4yDsROkfCO5nx1SlrlTqK9aoRF0T7D80OtS5_VpSMLN7DYcDioGhnqfnljNxhZrhCk3vwZQodnkpPRfn5G6bHP8BR1L07NNoc/s1600/DSC08318.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" rea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpqHtt5Iq8HxrYdMFnFW2g5i2fpPTHqT-1DYYaU7gauG-4yDsROkfCO5nx1SlrlTqK9aoRF0T7D80OtS5_VpSMLN7DYcDioGhnqfnljNxhZrhCk3vwZQodnkpPRfn5G6bHP8BR1L07NNoc/s1600/DSC08318.JPG" /></a><br />
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<span style="font-size: medium;">During a month that is supposed to be filled with thanks, I am most thankful for today, November 14.</span><br />
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<span style="font-size: medium;">Because on this day, in 1891, a baby boy was born in a small farm house in Ontario, Canada. He would grow up and make an astonishing discovery that would save my daughter's life 119 years later. Not just the life of my daughter, but the lives of countless others too. </span><br />
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<span style="font-size: medium;">Because in addition to everything I wrote about her above, Elise also has type 1 diabetes. Her body NEEDS insulin to survive, but no longer produces it. </span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ21j-WruUuoFY8dXUCH19de65v-PK7Nh6uVsEHLxoKsEGUxBofn5c42cgppfT4YCgLGLYHiC9Z_QmWgyRgTi20djy6Q3ACdpMi6ey2uk4b66ONt9icKaIqYV6JbRBB41soUppvYYE0VLq/s1600/DSC_0134.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" rea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZ21j-WruUuoFY8dXUCH19de65v-PK7Nh6uVsEHLxoKsEGUxBofn5c42cgppfT4YCgLGLYHiC9Z_QmWgyRgTi20djy6Q3ACdpMi6ey2uk4b66ONt9icKaIqYV6JbRBB41soUppvYYE0VLq/s320/DSC_0134.JPG" width="214" /></a><br />
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<span style="font-size: medium;">It was nothing she did. Or didn't do.</span><br />
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<span style="font-size: medium;">Nothing she ate. Or didn't eat.</span><br />
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<span style="font-size: medium;">There is no cure. No special diet. No secret spice. There isn't a bark that grows on a tree that can be brewed into a tea.</span><br />
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<span style="font-size: medium;">But there is insulin.</span><br />
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<span style="font-size: medium;">Today, I don't have to watch my daughter literally starve to death because of a faulty pancreas. And that is why I am thankful for today, the birthday of Dr. Fredrick Banting; inventor of insulin. </span><br />
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<span style="font-size: medium;">He saved my daughter's life.</span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFYI8hHNak0CdtitfCdY1vqxbY2NBaD8Huuw2PoUwjaHEoQ9F11hsdApRmXd_bacT7sVSFOPKOv3uR5SCQWInWxYlPxCqgIg49DdlfYziwjlDvG5xRUn4fMStzD8QtD_912n_KNUbzdrae/s1600/www.tressavent.com-LCG-JDRF+Session-June+2012-87.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="228" rea="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiFYI8hHNak0CdtitfCdY1vqxbY2NBaD8Huuw2PoUwjaHEoQ9F11hsdApRmXd_bacT7sVSFOPKOv3uR5SCQWInWxYlPxCqgIg49DdlfYziwjlDvG5xRUn4fMStzD8QtD_912n_KNUbzdrae/s320/www.tressavent.com-LCG-JDRF+Session-June+2012-87.jpg" width="320" /></a><br />
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Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com1tag:blogger.com,1999:blog-606637689904713685.post-3072038712010291662016-10-24T07:35:00.001-07:002016-10-24T07:35:22.096-07:00Hey Jealousy<span style="font-size: large;">A few days ago, some friends of ours had to take their 3 year old son into the local children's hospital because of seizures. Fred was away camping with Elise, so I kept up with their situation using his facebook. At some point, she posted about how she was feeling jealous of everyone's "ordinary weekend".</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Hey Jealousy... I remember you well.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Because it wasn't long ago that I couldn't take Elise out to eat, or be at a birthday party, or on a playdate with friends, without having to suppress a terrible rage that threatened to bubble out of me when I saw how easy it was for other people.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of toddlers that could eat whenever, wherever.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of not having to check blood sugars.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of kids who could "graze".</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of Moms who could just leave the house with a purse or diaper bag.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of not having to wait due to a high BG.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Jealous of forcing my kids to take a time out to eat because of a low.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So much jealousy.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So when I saw her post, I felt a pang in my heart. I remember yearning for "normal", and "ordinary" so badly that tears would spring to my eyes every time.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">I wasn't mad at the "normals", I was sad for me and my daughter.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Then I realized that jealousy is not really a burden I carry anymore. I will admit, when diabetes is being a jerk, a lot of those feelings come roaring back. Especially when I'm in a group situation, and life for everyone else is just flowing along while I'm in a corner, trying to tame an ugly beast.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">But in the day-to-day, diabetes is just a part of our routine; check, bolus, repeat. With a pump change, dex change and an occasional shot. It's a dance and we've figured out the rhythm pretty well. But I'm curious as to when jealousy decided to slink off into the night. Whenever it was, I'm glad he's gone.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">This weekend, I've had a taste of ordinary. Fred and Elise were away camping from Friday until Sunday, and in that time the boys and I ate our way through soccer snacks, post-game slushes, a pumpkin carving party, and plenty of eating out. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And nary a blood sugar check or bolus was seen.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">It was so extraordinarily ordinary. So normal.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">So freaking easy.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">But even if it is, missing her, is so very NOT easy. </span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">And I'm glad she's back... blood sugars, boluses and all.</span><br />
<br />Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-90762362532134541112016-09-26T09:55:00.001-07:002016-09-26T09:55:43.695-07:00FFL 2016... Bullet-pointed for your Pleasure<span style="font-size: large;">Friends For Life 2016 has come and gone, and strangely enough, my suitcases aren't putting themselves away (okay, they are now... two months later). So, in true procrastinator fashion, I'm going to write my FFL run-down instead of dealing with said suitcases. As always, bullet-pointed... because that's all my brain can handle:</span><br />
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<li><span style="font-size: large;">There's nothing like waking up at 6:00 AM, after getting very little sleep due to some wicked storms that lasted all night, and finding out your flight leaves a whole hour earlier than you thought.</span></li>
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<li><span style="font-size: large;">I also love racing to the airport, only to sit on the plane for 90 minutes at the gate. Because they were waiting for catering.</span> </li>
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</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">Florida in summer is truly the third circle of hell. But that's okay, Texas is the fourth circle, so I'm kind of used to it. Also, POOOOOOOOOL!</span></li>
</ul>
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</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">Nothing like watching fireworks from the pool.</span></li>
</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">One very interesting take-away I heard in not one, but <i>two</i> sessions, is that the biggest determinant of a1c is the amount of support the person with type 1 has. Not technology, not diet, not type of insulin... but support. I don't know why that made my head explode (in a good way), but it makes so much sense.</span></li>
</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">So someone start building that commune, already!</span></li>
</ul>
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</div>
<div>
<ul>
<li><span style="font-size: large;">Ed Damiano gave the opening keynote speech, and what can I say? He and the whole Go Bionic team are amazing. And I love seeing Elise's pic up there on his slides.</span></li>
</ul>
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</div>
<div>
<ul>
<li><span style="font-size: large;">Faster!</span></li>
</ul>
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<ul>
</ul>
<ul>
<li><span style="font-size: large;">I also had so much fun seeing these girls again... I had forgotten how much we laugh together.</span></li>
</ul>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHqjXZ5EDG3IRUuhc_ZWWVw2QSoRsFvblfyt4cCJc_3VS3xhlC1KjjjYnTWM9tsgeX7p4og3YBXtfAyxhwy1GjqoCbv1xeP3K34X9fbEtaRoQF6cnzWzv3ftRUV3oSBM9OJFtsjEeLHxrw/s640/blogger-image-1205186550.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg29qpy8-Vc2OLw1EkWlrD_bR3dg_BVMgmlGxkyn5dLHIotim_lihTFSlELOO9dR4y8Zs0KaY4OthKd9-G91qlrbTiW7btCEBt2QtbiZsfG22Z8zojsIIMSAQBdEuo7EmyxA9-FlI3ahXG5/s640/blogger-image-1513043943.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg29qpy8-Vc2OLw1EkWlrD_bR3dg_BVMgmlGxkyn5dLHIotim_lihTFSlELOO9dR4y8Zs0KaY4OthKd9-G91qlrbTiW7btCEBt2QtbiZsfG22Z8zojsIIMSAQBdEuo7EmyxA9-FlI3ahXG5/s400/blogger-image-1513043943.jpg" width="400" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg29qpy8-Vc2OLw1EkWlrD_bR3dg_BVMgmlGxkyn5dLHIotim_lihTFSlELOO9dR4y8Zs0KaY4OthKd9-G91qlrbTiW7btCEBt2QtbiZsfG22Z8zojsIIMSAQBdEuo7EmyxA9-FlI3ahXG5/s640/blogger-image-1513043943.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-7PZJomDTECAq_5of8pGJG6oMqmdTVahOXS6KXMKna0pFIzCYBVj-cJR6XN8o2xBDX4JIVcD3-d9VVbaR-NhhGYab_z6LA3vRI9N0SShbZGDpbMlzEeGovGWPZLSOGWubcBVQgT9J8sWc/s640/blogger-image-611597318.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-7PZJomDTECAq_5of8pGJG6oMqmdTVahOXS6KXMKna0pFIzCYBVj-cJR6XN8o2xBDX4JIVcD3-d9VVbaR-NhhGYab_z6LA3vRI9N0SShbZGDpbMlzEeGovGWPZLSOGWubcBVQgT9J8sWc/s400/blogger-image-611597318.jpg" width="400" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-7PZJomDTECAq_5of8pGJG6oMqmdTVahOXS6KXMKna0pFIzCYBVj-cJR6XN8o2xBDX4JIVcD3-d9VVbaR-NhhGYab_z6LA3vRI9N0SShbZGDpbMlzEeGovGWPZLSOGWubcBVQgT9J8sWc/s640/blogger-image-611597318.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyJ1bYgDbeQCyeSf-jxwGpjZUXuX9OB1X9WSzmn-6Sw1g2FBm96vhoFgUeWu48weJCAJiyp13N4DkuR9jDo86NR9OOisWRZ1-bECsHYhfXQkV_jRrsPI76LStsJ9s33h-PPzvkQrm1Bg6l/s640/blogger-image--1091117788.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyJ1bYgDbeQCyeSf-jxwGpjZUXuX9OB1X9WSzmn-6Sw1g2FBm96vhoFgUeWu48weJCAJiyp13N4DkuR9jDo86NR9OOisWRZ1-bECsHYhfXQkV_jRrsPI76LStsJ9s33h-PPzvkQrm1Bg6l/s400/blogger-image--1091117788.jpg" width="300" /></a></div>
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</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">So one of my <a href="http://neuroticcity.blogspot.com/" target="_blank">bestie FFLs</a> couldn't make it this year, so I went around and took selfies (and if you know me, I am NOT a selfie person), with some of her favourite people. And proceeded to probably annoy the crap out of her by texting every last one of them to her. </span></li>
</ul>
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<ul>
</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">Also, Joe Solo smells good. #sniffjoe</span></li>
</ul>
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</ul>
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<ul>
<li><span style="font-size: large;">We got to see our friends whose oldest daughter went to school with Elise for two years. They then moved away to another state, and their youngest (same age as Lucas) was dx'd at Christmas. So glad they made the trek to FFL!</span></li>
</ul>
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<ul>
<li><span style="font-size: large;">The banquet was Wizard-themed this year... lots of fun props to play with!</span></li>
</ul>
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<ul>
</ul>
<ul>
<li><span style="font-size: large;">Collect all the stuff</span></li>
</ul>
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</ul>
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<ul>
<li><span style="font-size: large;">George Canyon played a few songs during the dinner... he's T1, Canadian, and he sang a song about farts! Triple crown! Seriously, I am so thankful for the prominent people with T1 that come out to FFL. I love that our kids have some great role-models out there.</span></li>
</ul>
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<ul>
</ul>
<div>
<ul>
<li><span style="font-size: large;">Besties</span></li>
</ul>
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</ul>
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<ul>
<li><span style="font-size: large;">And can I just say how amazing the childcare/elementary programs are? My kiddos love going to their groups. And this girl, S... Mattias loves her. When they were saying goodbye, he didn't want to let go.</span></li>
</ul>
</div>
<div>
<ul>
<li><span style="font-size: large;">Speaking of Mattias... do you know what's awesome? Your 5 year old throwing up multiple times during the night. Having housekeeping come at 1:30 AM to change a vomit-covered bed was the part of my life I didn't know was missing. Thankfully, it was right before we went home and only lasted for 12 hours. </span></li>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7F90rWa9HGpDjVk0z2rZV-LgFEZQkxBkQHkvvaI87nGhOXrjHdqSwDApF-yyim-JKBcgmj8r5uXUCxZe55bOlDoc9-NgR1dJJ-cxA1YKK-YWf1NXt9t5lSji4vaI73gf6513V57g5-BnI/s640/blogger-image-1082866161.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW_Y_zbgbbp8I7Q0MpooQHzvzIuzwemdh-DZae-HyZckG8yqu7XJa_xPC8XmpxVKa6LqGeXvSpMtFg-VZyie_ZGWoeO5ARo-LNVNS2fHTtR8aff1o-mK56n9I_S06_jb5kCSRmoCYuV64w/s640/blogger-image--573205202.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="266" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW_Y_zbgbbp8I7Q0MpooQHzvzIuzwemdh-DZae-HyZckG8yqu7XJa_xPC8XmpxVKa6LqGeXvSpMtFg-VZyie_ZGWoeO5ARo-LNVNS2fHTtR8aff1o-mK56n9I_S06_jb5kCSRmoCYuV64w/s400/blogger-image--573205202.jpg" width="400" /></a></div>
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<li><span style="font-size: large;">Whoever thought up Sports Central is awesome. We loved hanging with Bill and Betsy, and playing soccer until they shut us down. </span></li>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEQQpbZOwSLF73bYxamGR47x6Qspj74Z2khTi1M3fitmWLod4DJN0We79m98WqAuqB-FYaFxnYTrgB0CvayHQTfyMZVG4-iGAuHHPWV6b-aHkGNqC-2ojQOsOmdC4KMG4Y9XrP7WHEYcuX/s640/blogger-image-1290638764.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEQQpbZOwSLF73bYxamGR47x6Qspj74Z2khTi1M3fitmWLod4DJN0We79m98WqAuqB-FYaFxnYTrgB0CvayHQTfyMZVG4-iGAuHHPWV6b-aHkGNqC-2ojQOsOmdC4KMG4Y9XrP7WHEYcuX/s400/blogger-image-1290638764.jpg" width="400" /></a></div>
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<li><span style="font-size: large;">And just in case anyone asks, we most certainly did NOT have our three year old fall asleep on the floor in the corner of the soccer field. Okay, maybe we did.</span></li>
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<li><span style="font-size: large;">If you're on the fence about FFL, and you have a way to make it happen, I encourage you to go. Just go. You have no idea the information, love, support, and new friends that await you. It not only helps Elise to feel "normal", but I think is great at teaching empathy to her brothers. It has taught me how to "roll" with diabetes better, and to really understand that this disease is not a "one-size-fits-all" kind of thing. I love hearing everyone else's perspective.</span></li>
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Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com2tag:blogger.com,1999:blog-606637689904713685.post-76176134725889192032016-09-19T15:02:00.003-07:002016-09-19T15:02:43.013-07:00Team Elise... walking this weekend<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtLzP-OuEWzJj1j8Iju7GZZZNoz5-zP86fbKARQnY0WQITaGGt3eAblLNSrUHHp9KHoLfMf2pGlNsaAikbWxMHwERX5r15AJK0BgBGu9fdEz3ic8pqRJ7tRylCSv9NpC3h11_jqIuPqweK/s1600/Elisediaversary.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtLzP-OuEWzJj1j8Iju7GZZZNoz5-zP86fbKARQnY0WQITaGGt3eAblLNSrUHHp9KHoLfMf2pGlNsaAikbWxMHwERX5r15AJK0BgBGu9fdEz3ic8pqRJ7tRylCSv9NpC3h11_jqIuPqweK/s320/Elisediaversary.jpg" width="320" /></a></div>
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<span style="font-size: large;">See that adorable face? That was Elise on the day she was diagnosed. Over 8 years ago. Fast forward to this:</span><br />
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9SqBhnY2DRiM1TwzioCvMUPTUQl4lJId65mJHzJB3_kvF2xyoaFvIwJIqshsPgz8mMLez9XlJHDpPsiQHlBHUhT5DCtxmKfnyHpvQLM2RbskBvycaZZHdf-fzr01EpGqX5IvsDzEwxQMu/s640/blogger-image--1079130014.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9SqBhnY2DRiM1TwzioCvMUPTUQl4lJId65mJHzJB3_kvF2xyoaFvIwJIqshsPgz8mMLez9XlJHDpPsiQHlBHUhT5DCtxmKfnyHpvQLM2RbskBvycaZZHdf-fzr01EpGqX5IvsDzEwxQMu/s320/blogger-image--1079130014.jpg" width="320" /></a></span></div>
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<span style="font-size: large;">This Saturday, this cute face, along with 150+ others, will walk in the JDRF One Walk in Dallas for Team Elise. If you live in the area and want to join us, just go to <a href="http://www.teamelise.com/">www.teamelise.com</a> and click "Join".</span><br />
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<span style="font-size: large;">If you don't live in the area, but would like to support Team Elise, you can do so by following the above instructions which will take you to the JDRF fundraising page.</span><br />
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<span style="font-size: large;">Go Team Elise!</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com0tag:blogger.com,1999:blog-606637689904713685.post-23303589882373258092016-08-22T07:11:00.001-07:002016-08-22T07:11:49.756-07:00She's Perfect<span style="font-size: large;">A few days (weeks, months... I'm not entirely sure) ago, I was watching the Friends episode where Chandler and Monica are trying to find a sperm donor. The unsuspecting mark is John Stamos (well, some dude whose name I can't remember, played by John Stamos) who thinks he's just there for dinner.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Monica and Chandler start bombarding him with bizarre questions about his health and family history, and I was all smiles and chuckles until Monica piped up with, "Do you have a history of diabetes in your family?"</span><br />
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<span style="font-size: large;">And that's when it hit me. I mean, I guess it has hit me before, but in bits and pieces. But this time it struck me full force in the face... the world views my child as damaged, or less than.</span><br />
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<span style="font-size: large;">Ouch.</span><br />
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<span style="font-size: large;">I know there are people out there who see diabetes as a liability. I've had at least one mom tell me flat out that she didn't feel comfortable driving Elise to or from a sporting event. I've witnessed her get left out of birthday parties that included sleepovers. Another Mom confided in me that having Elise over for a play date makes her nervous.</span><br />
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<span style="font-size: large;">But I also wonder what judgments await her down the road? Will diabetes be responsible for her not making a team? When she turns 25 and starts dating will potential partners hear diabetes and head for the hills?</span><br />
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<span style="font-size: large;">Elise herself has told me she's not entirely sure she should have kids because she doesn't want to give them diabetes.</span><br />
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<span style="font-size: large;">Sad things to think about when you're 8.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">In fact, Elise told me a story about a boy who told her she couldn't play soccer with them at recess because "she has diabetes". </span><br />
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<span style="font-size: large;">Cue blood boiling.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">But here's where I see hope. Because a little boy in her class turned to the soccer-bully and told him, "you can't talk to her that way." Side note - I really like this kid. Between you and I? She should totally marry him. You know, after she turns 30.</span><br />
<span style="font-size: large;"><br /></span>
<span style="font-size: large;">Sometimes the kids get it though. Better than we adults. One of my favourite stories is about a little boy in Elise's kindergarten class who was sweet on her. R's mom told me that she overheard him say to his Grandma, "I think I'm in love... Nana, you should see her! She has diabetes and even wears a pump... she's beautiful and she's perfect!"</span><br />
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<span style="font-size: large;">A little 5 year-old who gets it.</span><br />
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<span style="font-size: large;">He's right.</span><br />
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<span style="font-size: large;">She's perfect.</span>Joannehttp://www.blogger.com/profile/15030783893373288244noreply@blogger.com5