6 days ago
Monday, May 12, 2014
So. It's been a little quiet around here lately. Lots to write and zero time to do it. I was hoping that the fifth annual Dblog Week would be the kick in the pants I needed. Let's see if I can make it work...
Monday - Change the World Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. Are you passionate about 504 plans and school safety? Do diabetes misconceptions irk you? Do you fight for CGM coverage for Medicare patients, SDP funding, or test strip accuracy? Do you work hard at creating diabetes connections and bringing support? Whether or not you “formally” advocate for any cause, share the issues that are important to you.
This one. This. That word... advocate. I'm stuck on that. The problem is, I don't feel like one. I look around the DOC and see everything that is being done; the Strip Safely Campaign, Children's Congress, Spare a rose, Save a Child... I know there are more, right now my brain is just a little tired.
What I love about the DOC is their ability to start a grassroots campaign and run with it. And I love how quickly everyone hops aboard. I will usually hear about it and say, "Self... you need to look into that when you have some time." My problem is that last word; time. There just isn't enough of it.
But instead of beating myself up about my lack of involvement, I do what I can, where I can. And that amounts to speaking at a newly diagnosed class at our Children's Hospital once a month.
Because reaching out to families that may be feeling like they are drowning is my passion. Fred and I didn't have that at the beginning, and it was a very dark time for us. So I try to be a tiny light in their new, strange world. I tell them our story; how far we have come, how amazing Elise is, and I can usually get through it without shedding a tear these days.
Interestingly enough, I usually see quite a few tears in the eyes of the people I'm speaking to. And when they come up to me later, a lot of them tell me that they are tears of relief, knowing that someone has been there and come out the other side just fine.
It may not be a lot. I may not be blazing new trails and making my voice heard across the country, but for now, it's enough. I'm making the difference where I can, and maybe one day it will lead to more, maybe not. But if it helps even one person, it's enough.
Just like the starfish.