September is here, let the real new year begin. Okay, so this post is a bit late... but when your hear of what our family has been up to, you'll understand why. But that's another post for another day. Onto the learning!
-Writing out a 504 can be daunting, but in the end it all turned out great. We have a wonderful nurse, and a team that is willing to work with us. The head health person for the district (can't remember her official title, and I'm too lazy to find it) was in our meeting and she had extensive experience with type 1. She knew exactly what we were talking about, and had our backs when the 504 administrator said they couldn't make a certain accommodations. When we protested that that the school HAD to do certain things, she piped up very quickly that we were right.
-I loved watching my husband get tough when they tried to say no. One of the issues was that the school wouldn't provide an UDCA (unlicensed diabetes care assistant) for extra curricular activities. Fred very quickly interrupted with, "well, you HAVE to, that's the law). He did it in a very pleasant, but very firm manner. It was awesome.
-As much as letting Elise go was gut-wrenching, I have never seen a child who was made for school. She loves it. And it makes me happy to see her so excited. Already we've had two glowing reports from her teacher on how kind, helpful and bright Elise is. Okay, I'll stop being so braggy now. But Elsie going to kindergarten has taught be the huge importance of letting go. Even when it kills me inside.
-As great as our school has been, I know others out there are not so lucky. A good friend of mine just moved to another state and is having to fight the school for things that ARE THE LAW. It makes me so mad that I want to fly out there and help her kick some ass. But how terrible is it to be in such conflict with the people you are trusting to keep your child safe?
-Did you know that some insurance companies will cover extra supplies so you can keep a stash at school? We had our doctor write a prescription for "school supplies", and received a months supply (at our normal co-pay). If you need extras for school, call your insurance company to find out if they do this too!
1 week ago