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Friday, August 1, 2014

Two weeks... gone in a flash

The pictures are coming fast and furious via text. Fred is already at camp this morning and is getting to hug our little girl for the first time in two weeks.

I am so beyond jealous, it's not even funny.

She looks happy.  Older.  Wiser, even.  But she still looks so little and I can't wait to see her with my own two eyes.


From all reports, she did well.  Loved camp and even the bionic pancreas.  I'm excited for when Fred meets with the team to find out all the details.  Since I can't be there in person, I will be there via Skype. Thank goodness for technology.

These last two week have been glorious.  And terrible.

I am so glad Elise had this oppourtunity to spread her wings and be free and amoung her people.  The fact that she did so well on her own at the tiny age of 6 (and for the first time ever), speaks volumes about her strength, and I am so proud of her.



And yet it has been overshadowed by the loss of our son.  While my heart should be rejoicing, it is instead shrouded in sadness. And I hate that this experience will be forever tainted.

I've been told that in time, that the sadness will grow dim.  I just hope that the joy will shine brighter as we get closer to the bionic pancreas being a reality for all with type 1.

7 comments:

  1. I'm so encouraged by you and your daughter volunteering for this important study. Thank you. I also realize that nothing can make up for your loss. I too hope that things will be better in time.

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  2. I'm so proud of your sweet Elise. She's such a precious girl -- when I think about everything our sweet daughters had to be willing to do...daily glucagon site changes, wearing bulky equipment 24/7, extra finger pokes with harpoon lancing devices, plus doing all of it away from their parents and siblings...I'm just so proud of each child - youngest to oldest, boy or girl - who stepped up, willing to take on the challenge.

    I am so incredibly sorry for the loss of your sweet son. I can't fathom the range of emotions -- beaming with pride for Elise to immense heartache over losing Nicolas...all mixed together - one minute, one emotion...the next minute, a different one.

    Praying for your family.

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  3. You and your family have been in my thoughts every day. I wish I could say something that would lift your sadness.

    You can be proud of your sweet little girl! She is so little, and SO strong! We are all so proud of her. And Ally fell in love with her while at camp :) She couldn't wait to tell me how sweet she was!! <3

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  4. I'm also incredibly heartbroken that losing your sweet son dampened this amazing time going bionic :( my heart aches for you in so many ways! Elise is so incredibly brave, and indeed she does already reflect the magnitude of her experiences at camp, pictures are priceless! (Hugs)

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  5. I have followed your blog for a number of years. My 22 year old son was diagnosed with Type 1 almost 10 years ago. He has used a Medtronic pump for 9 years now. He just started a Dexcom CGM and loves it and is also switching to a Tandem pump in the next few months. He was chosen this summer as an intern for Students with Diabetes and is almost finished with his internship at Novo-Nordisk in NJ. He attended the Stdents With a Diabetes conference in Tampa in early June and saw a demonstration of an artificial pancreas. He said there were few dry eyes in the room (SWD range in age from 18-30). I am thrilled for your daughter to have had this incredible experience. I pray for all CWD and PWD that this technology is approved and available soon. Amazing! I am so sad for you and the loss of your son. Prayers and thoughts for you and your family.

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  6. Love how your little bird has begun to spread her wings and is soaring! What a story she will have to tell when asked "What did you do over Summer vacation?" Continiuing to keep you in my thoughts and prayers. xoxo

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  7. I'm so sorry for all you have gone through. I hope your little girl gets home to you soon so you can hug her. You must be so proud of her. Hang in there. Time will heal although you will always mourn your son's loss. I'm sure you will think of him every day. With three young children, you will be very busy. That may help you get through each day. Put one foot in front of the other. Take it one day at a time. Prayers, you have them in spades.

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