Wednesday, May 15, 2013

Not fade away

Dblog Week Day 3 - Memories

Today we’re going to share our most memorable diabetes day. You can take this anywhere.... your or your loved one's diagnosis, a bad low, a bad high, a big success, any day that you’d like to share.

This one was a head-scratcher for me... most memorable moment in the last 5 years? There have been so many... how do I choose just one?

Since I must, I'd have to go with the day that started it all.  Elise's diagnosis day... September 6.

It was just two days after her first birthday.  We had a small party with some friends planned for that day, but first we had to take care of some troubling business.  At her well-child visit the day before, they had found sugar in her urine.  They asked us to come back in for a re-check.

The weird thing about our whole experience at the pedi is that we didn't find out the results until after we went home.  I don't know if they suspected diabetes right away, and if they did... why not do a finger poke?  I've often wondered why the events played out the way they did, but I can't find any fault with the doc. Who thinks to look for type 1 diabetes in a baby?

Anyway, once we were home we received a call for the pedi telling us there was still sugar in Elise's urine and she wanted to send us to a hospital to do a blood draw on Elise to find out her A1C.

I have to interject here and say that this was a Saturday, so by this time the doctor's office was closed. 

To the Children's Hospital ER (at our doc's suggestion) we went, and they were rather perplexed as to what to do with us.  This was a new location that had just opened up 3 weeks prior. We finally got the blood drawn and were sent home.  Again, knowing what I know now, I would have questioned doing all this. 

It was in the middle of Elise's party that we got the call... diabetes.  Go directly to the hospital.  I was in total shock and the details of our 5 day hospital are a blur.

But I will never forgot that phone call.

Or the lump that formed in my throat and the fist that gripped my stomach.

The tears that fell.

Even 5 years later, my heart hurts the exact same way it did that day our lives changed forever.
I wonder if it always will?


  1. I got a lump in my throat just reading this.
    She's growing up to be a courageous and beautiful young woman.

  2. (hugs) 24 years later I still feel that same lump of the diagnosis of my then toddler.

  3. There's something chilling about it interrupting the birthday party. Diabetes breaking into such a celebration. The way it always does.

  4. I think those moments, the moments of dx, will never go away. At least not for the mamas (and dads) that were there and old enough to remember.

  5. Yep...the same here. That hurt in my heart, lump in my throat and many a tear. xoxo

  6. The ped office may have done things in an odd way by sending you home before getting the results, but THANK GOD (and I say that in all sincerity) they checked her urine! I worked as a nurse for pediatricians for 11 years, and checking urine was not a routine part of the check-up until age 2, and was often skipped even then due to the difficulty of getting a sample. This floors me knowing what I do now.

  7. I'm happy I clicked on your blog. I'm new to this world and have an infant (dx @13 months). I've been searching for people who share my experience. Thanks for sharing.

  8. My heart hurt reading this too! It hurts for you because I know the hurt. And yes, I think it will always hurt when we think about that day.

  9. Im happy to bump over your blog too. Its great to read other people's experiences on diabetes. It makes me feel so at ease and ready to battle it out.


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