Site Meter

Wednesday, July 9, 2014

Bionic!

See that face?  That is the face of one excited little girl.  There is so much to update on our recent adventures, but this piece of news is a big part.

In 11 days, Elise will be one of the first 6 year-olds in the world to trial the Bionic Pancreas.  She will be headed to Camp Clara Barton for two weeks, and will be wearing this revolutionary device for 5 days.

It's an amazing concept, and I was able to hold it in my hands.  I'm hoping to write more as this adventure continues and keep you updated.

But for now we're finishing up our vacation and enjoying our time together before re-entry into the real world.

And I'm soaking up all the time with Elise that I can before she leaves to help change the future of people with type 1 diabetes.

To see more about the study and camp, check out this video:

http://youtu.be/U5JVrPM6FFY

17 comments:

  1. Whoa. That's huge! Good luck to her and congrats on your recent news. I saw that you were at FFL and wish I had been able to shake your hand. (I was at Master Lab). I love your writing. Good stuff.

    ReplyDelete
    Replies
    1. Awwww, I'm sad I didn't get to say hi. I was going to sign up for Masterlab, but it was just too long of a session... especially with little ones running around that needed naps.

      Sorry I missed you!

      Delete
  2. We'll "see" you there! Okay...her and Fred...and you in spirit. It's exciting to be a part of this game changer!

    I'm so proud of Elise for jumping in and giving it a try! Make no mistake...it's a BIG commitment for each of these kids, but those itty bitty ones especially. (((Hugs to you))) as you prepare to send her off into the big world of diabetes research!!!!

    ReplyDelete
  3. Oh I'm so excited for you guys!

    ReplyDelete
  4. THIS IS SO AWESOMEEEEE!!!!! <3 I'm so very excited for you guys!

    ReplyDelete
  5. so exciting!!!!!!!!! cant wait to hear I mean read all about it :)

    ReplyDelete
  6. This is so amazing! I'm sure it'll be harder on you than anyone else since you won't be with her, so I'll keep YOU in my thoughts too! (And seriously, if they need anything, I'm not far away. Don't hesitate to ask)

    ReplyDelete
  7. Yay!! So awesome that our girls will get to do this together. I have already instructed Ally to keep an eye on Elise ;)

    ReplyDelete
  8. Thank you, Elise, for volunteering to test this device. I wonder how soon the artificial pancreas will be marketed. I am wondering if two cgms plus pump will be needed when the bionic pancreas becomes available. I hope they will be able to bring it to market with just one cgms and the pump itself. It's a lot to ask of one little girl to wear all this equipment and work with researchers to help others, and I admire you for being brave enough and kind enough to helps us all. I will look forward to a totally honest account from the child's perspective as to how it is living with and wearing this device. P.S. I'm sure it works; just wondering if the child experiences freedom or the feeling of too many devices. I know parents will love this; but only the person wearing it can tell us the actual experience.

    ReplyDelete
  9. You go Elise! What an honor...Thank you for representing us little type 1's and helping to make our lives that much better and brighter! xoxo

    ReplyDelete
  10. Oh my gosh! This is AMAZING!!!! I can't wait to read all about it! Safe Travels Elise!!! :)

    ReplyDelete
  11. Wow! Can't wait to hear more.

    ReplyDelete
  12. this. is. sooooooooo. exciting!
    I am super excited to hear how this all goes for you guys. Thank you for being apart of this amazing research. A million thanks!

    ReplyDelete

Comment moderation now in effect because of jerky comment spammers.

Now please leave your message after the beep.

Beep.