I found out some sad news today. In August, the church we've been going to for the last 7 years is moving their 6:00 pm service to 5:00 pm. Which, for most people, is no big deal. For us it means we'll probably have to find a new church.
With the insulin Elise is on, neither of the other two services (9:00 am, 10:45 am) work for us. Elise gets her shot and eats breakfast around 8:20. We've tried making it to the early service and we could never get there before 9:15, and we're usually so frazzled and stressed out, it was hard to even focus on what the pastor was saying when we actually sat down.
The 10:45 doesn't work because Elise is on NPH, which peaks at around noon. The service ends about 12:15... most days. The other reason this service doesn't work is because I test Elise's BG around 10:30/10:45 and figure out her snack based on that number. This is NOT something I feel comfortable letting her Sonshine Pal do.
The 5:00 won't work because that is the time Elise eats her dinner. Our church will be doing a community meal after the 5:00 service (around 6:15), and Fred and I talked about seeing if we could move her dinner to 6:00 (just leave the service a bit early). But that doesn't work because it puts it too close to her bed time.
I just don't know what to do. Before Elise was born, we were very involved in our church, and know so many people there. It would be so hard to leave. Plus, we have been very blessed to find two people that stay with Elise one-on-one in the nursery (her Sonshine Pals; they alternate weeks). One is a very dear friend of ours, and the other is a nurse. Without them, we wouldn't be able to leave Elise in childcare at church.
People say that we shouldn't let this disease run our life, but our day with Elise is so structured (between meals, snacks, naps and bed time), it's almost impossible to change things up too much.
On top of this awful news, I have a feeling something is up with Elise. She had a total meltdown in the nursery tonight, and we just checked her BG a few minutes ago it was 315 with .4 ketones. She just had a vaccination on Thursday, could this be a delayed reaction? Something else completely?
Sigh, I hate this disease.
3 hours ago