We are a few days shy of our 3 month-aversary of pumping, and I thought I'd share a few of my thoughts about the whole process.
The beginning was hard. I think that's well documented on my blog. I think our difficulty was spawned by our very unique circumstances... moving from NPH and diluted insulin to a pump. I think I was very unprepared for it, which made it even more difficult.
Once we got her settings figured out (for the time being), it was like some sort of BG nirvana. Being able to temp basal instead of feeding at night has been awesome. We love the freedom. We love that you can't even tell Elise is wearing a pump. We love being able to say yes to cake and pizza at 2:00 in the afternoon.
When we started experiencing the pump-change highs, I wrote this post. Thankfully, my distress call was answered by the awesome DOC and we're pretty close to figuring out the pre-bolus/temp basal combo we need to combat those highs.
We've had our share of alarming pods. Sadly they always seem to happen mere hours after I've just changed her pump. Elise is amazing when it comes to pump changes, but two in the span of 4 hours is more than any little girl can bear. Otherwise we haven't had any bent cannulas or bleeders. Once we did have a pod fall off right after we changed it.
We miss our dex. I think it would really help us out when it comes to tweaking... but Elise still says no, and I'm okay with it. What I don't miss are the buzzing and beeping! One noisy device is enough!
Then came the lows. Wow were they bad. Looking back I'm pretty sure the culprit was a sneaky tummy bug. I say sneaky because there doesn't really appear to be anything wrong with you, except you feel kind of nauseous. Elise kept telling me her tummy hurt, which is something she says when she's low. So I totally missed that she was ill. Bad mom.
I have learned that with pumping, you carry a bigger burden than when on MDI. You have the capability to tweak to your heart's content, but that can be overwhelming. How do you know what the trouble-maker is? Basal? I:C? Correction factor? Something that has nothing to do with settings (illness, growth spurt, stress, etc.)? I have a love/hate relationship with this aspect of pumping.
I've been asked if I wished we had started pumping a long time ago. My answer is no. We waited over three years after Elise was dx'd to start pumping, and it was the perfect time for us. I was able to learn so much from the DOC, and I felt like we chose the right pump for us.
Once upon a time, Omnipod was not even on our radar as a pump choice. We were all set to go with another company, when I started hearing some unpleasant things about their pump. So we contacted Omnipod, and as I met with the rep and CDE, I was blown away at how we were treated as customers. They truly care for Elise. I cannot say enough about how well we have been treated.
And that's our pumping story so far. We love it. Elise loves it. If you charted all of our ups and downs it would look a dexcom graph on a bad day, but we wouldn't change it for anything... Right Elise?
6 days ago