As I was perusing my D-Mom and D-Dad blogs a few days ago, I noticed a common thread... there are a lot of us riding the glucose roller coaster right now. And I'm wondering what planets are in alignment to unleash this hell upon us.
For us, it started off with just dinner problems; we had to start giving Elise her insulin about 25 minutes after she started eating because if we gave it any sooner, she would drop low, we would have to give her some fast-acting carbs, then she would sky-rocket from all the extra carbs.
But it's still not a fix... as we watch the CGM we see that she holds steady while she's eating (once we had a record 45 minutes steady BG, she didn't start rising until after she had finished eating). We usually give her the shot as soon as we see the slanted arrow up appear. Unfortunately with this method, we get double arrows up into the 300s, then double arrows down. All in the span of an hour. If I give it any earlier, she crashes.
Tonight, she was 151 going into dinner. I gave her 1.5 units for almost 40g of carbs. She held steady for 25 minutes and started to go up. I gave her the shot, and in 30 minutes, she's almost at 300 with double arrows up. I looked at the CGM 20 minutes later and she's at 179 with double arrows down. And 15 minutes after that, she's 96, double arrows down. She's 84 via her meter, so I give 7g. Now I'm just waiting for the spike to happen (and it will).
My brain is so fried from trying to figure this out. This issue only happens at dinner. Her ratio at dinner is now over twice what it is in the morning. I think our next step is to go back to diluted insulin at dinner time. I can't stand to see the peaks and valleys on the CGM, but I'm too afraid to take it off of her for fear of missing a crash.
I have never felt this helpless, useless, and downright hopeless before. Nothing we try has worked. And it's got me in a funk. I think we've had smooth sailing for so long, I don't have the capacity to deal when I can't figure it out. If you've been reading my blog for awhile, you know that we don't bother with the CDEs at our endo because they have proven themselves useless time and time again. Talking to them would drive me to tears.
Thankfully, we do have an endo appointment in 9 days. But I don't think I'm going to last that long.
19 hours ago