Wednesday, November 9, 2011

Our first blurg

I realize that with pumping there are going to be a lot of firsts... many of them not good. I just didn't expect it to happen so quickly.

We were on day two of our second pod. Technically, since it was after midnight, it was day three. But let's not get caught up in semantics.

Anyway, it had already been an eventful night. Mattias has croup and had been crying off and on since 9:30.

Right around midnight, I heard crying from Elise's room. I went in and she told me her pump was hurting. When I looked, I could see a lot of redness around the insertion sight. Her BG was 320 and ketones .4.

It all went very bad when I told Fred we needed to do a pod change. Elise starting shrieking, joining in with her brother' cries; giving us screaming in stereo. Utter awesomeness.

It took over 45 minutes to convince Elise to let us take off the pod and put on a new one. I really think it was of the worst diabetes-related things we've dealt with to date. She was so adamant about not putting another pod on, I thought we might have to break out the NPH again, just to get some insulin into her. She actually started demanding we go back to shots.

We finally talked her down, got a new pod on and gave her the much needed correction. As I laid with her while she drifted off to sleep, she said, "I'll think more about the shots tomorrow when I'm not so tired."

For all the ease that comes with pumping, I know there are trade-offs. I will take a middle-of-the-night shot over a middle-of-the-night pump change every time.

Thankfully, today is a new day and Elise is back to loving the pump again. And I'm hoping we don't have to do that again for a very long time.


  1. EMLA the size of a half dollar covered with IV 3000 dressing and left on for 1.5 hours (in this case you may have had to give a corrective shot of fast acting first) will make a site change painless. Our endo would recommend leaving it on for 45 minutes and it still hurt her. I have personal experience using EMLA (don't ask), asked the ER doc why I felt nothing when our DD said EMLA did not help and he said put a large enough amount on and wait at least 1 hour and 15 minutes for it to anesthesize. Endo does discourage long term use but we were able to use it for two years. Many use it longer than that. If endo will not prescribe (some won't) ask her pedi.It's safe, just not to use over large areas of body. I think these kids suffer enough and anything that can help reduce the trauma can and should be used. At some point she won't need it. Hugs to you and Elise. I know how it must have hurt you to have your little on so upset.

  2. Ohhh, I can't even imagine.
    I know it will get better but I'm sure it's hard to be patient with stereo crying.

  3. I am to on the pump learning curve!

    I wish you much luck to not have to do that again for sometime :)

    I love Elise's I'll think about it when I'm not tired!! TOO STINKIN CUTE!

  4. We did have once or twice when my son started crying about a sudden intense pain with the pod site, but there haven't been many. Hopefully that will be your situation. I know the feeling of stereo crying.

  5. uuuughhhh. sorry things were so rough. /understatement

    i love her comment the following day though. <3

  6. This definitely hit home for me! So glad Elise was able to give it another try the next day...such a cute response from one smart cookie. Sending you many hugs as you all continue to adjust.

  7. Yuck!
    Add in screaming in stereo and you have BIG YUCK!
    We have had to do the middle of the night site change a couple of times and it sucks. (and ours was with only one child sceaming!)
    Glad you go her through it, though, and glad that she is back on board with her pod. :) The next time will be easier!

  8. oh man croup is awful...and highs with ketones knowing a site changes is inevitable is awful, too. I hope Mattias is on the mend and things are smooth sailing with the pod for quite some time. I felt like it was a really rough start for us with Isaac and the pump too, I truly remember thinking I was going to chuck it against the wall one night when he had such high BG and ketones, luckily I didn't (truly could have happen in the emotional sleep deprived state I was in!) And now things are much better...I believe you'll get there, too. Where at least if it does happen she and you will not feel such intensity about the situation, one day you'll do pod changes as quickly as a shot :)


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