Although it's better than it was, Fred and I are still up two to three times a night checking Elise. We are seeing some seriously WEIRD numbers.
The one that has us stumped during the day is her post-nap number. She is waking up in the low to mid-300s. We can't tell if we're missing a low while she's asleep, or her morning N needs to be increased. For example, to day she was 184 right before her nap at 1:00pm. It took her awhile to go to sleep, and when she woke up at 3:30, she was 304.
I think the only way we'll be able to figure it out is with a CGM, but I don't know if insurance will cover it or how expensive they are (or even if Elise will tolerate such a thing).
We've also been giving her DH(only 1.5 - 2 units) with her bed time N shot because we're having trouble getting her down after dinner. She's high going into it, and no matter how much DH we give her for her dinner time shot, she ends up at almost the same number three hours later. So tonight she was 315 at dinner, we gave her 14 units of DH (4 units more than she usually gets), and exactly three hours later, she's at 335.
I HATE giving her DH at bed time, because it's so scary for us to let her go to sleep with rapid-acting in her system.
Can anyone offer any insight from their experiences? I know it's hard to tell just by what I've written out here, but I'd welcome any advice. I think an email directly to the endo is in order on Monday if we can't figure it out before then.
1 day ago