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Saturday, December 12, 2009

Out of the loop

Wow, I feel so far removed from what has been happening with all you guys. Life has been crazy since we returned home and I haven't really had a chance to catch up on all your blogs. It might take me a month, but I'll do it!

First (and worst) of all, Elise's BG has been all over the stinkin' map since Thursday, which was the day we switched from diluted Humalog to full-strength. It has seriously been a nightmare, I think we were up every hour last night checking her and had to stop a low on two separate occasions.

Then tonight as we were putting her to bed, she started asking for banana and goldfish, something she does only when she's going low. I started to disregard her, chalking it up to wanting to stall the inevitable (the timing just didn't make sense for her to be low), but my Mommy-instinct kicked in and I checked her anyway. She was at 66.

It was weird for a bunch of reasons, #1: at that hour (9:30), she should have had no active insulin. She received her dinnertime H at 5:10 (with a BG of 334). Reason #2: she had a 15g snack at about 7:50 (BG was 169), that amount of carbs at that time usually shoots her into the low 200s by 11:00. Reason #3: she received her bedtime shot of N (a decreased dose by .5 units) at 8:30 and 1 hour is way, way too early for the N to be doing anything to her BG. We usually see it affect her BG by hour 4.

The only thing that was out of the ordinary was that as she was nursing before bedtime, she started to cough so hard that she threw up (milk only). It was about 30 minutes later that she started asking for food. I don't think it was enough to cause her to go that low.

I know Humalog is supposed to peak around the 2-hour mark and be pretty much gone by hour 4. But could the full-strength be affecting her differently because her body is used to diluted? She used to get 10 units of DH at dinner, and now we give her 2 units (although tonight was 2.5 because she was so high). Or is it just a coincidence that we've started having all these issues when we moved from diluted to full-strength?

There are also a bunch of other variables going on; Fred's family is in town and she's so busy having fun playing with her cousin, all this visiting has led to late bedtimes and a somewhat disrupted schedule.

I just feel so overwhelmed right now. I'm not sleeping. I'm barely eating. My house should be declared a disaster-zone. I have no food in the house since I haven't had a chance to go grocery shopping since we got home. I'm too tired to try and make any sense of Elise's numbers and how to fix our insulin problem. My to-do list is about 3 miles long and I can't get my act together to take care of any of it. Our Christmas tree is up, but has no decorations or lights on it and I have yet to take all the Christmas stuff out of storage. And let's not even get started on the Christmas shopping. I might just start to cry if I think too hard about it all.

Instead I will just emotionally vomit all over you guys while I try to figure out a way to clone myself.

7 comments:

  1. WOW! You have so much going on. I wish I could take it all away!!
    Let's chat tomorrow and see if we can brainstorm our way through it since Nate has always been on full strength H.

    I can come over and clean and decorate if you watch the kids.

    XOXOX - thinking about you!!

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  2. Diluted is very differnt than full strength. After you find the right ratios and make some adjustments, you will find that it is more reliable. But talk about bad timing...what a time to be dealing with it, with family and the holidays! I'm so sorry Joanne, I know just how you are feeling and I wish I was close...I would shop for you, I would make you some soup, and I would decorate your tree with Laura.

    A few weeks ago, I was in the eye of the storm too...but all is calm now...The storm seems to last forever, but the calm will come. I hope it comes to your family soon!

    And for goodness sakes Fred, go get that girl some fries!

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  3. (((HUGS)))

    I say forget the decorations. Not that I'm a scrooge, but that's not what Christmas is about. Don't worry about shopping. Just enjoy your family...talk to Elise about the birth of Christ -- maybe get a little nativity that she can play with.

    As for your house, well, just take it one day at a time. Focus...first things first -- FOOD! Take a nap with Elise instead of doing housework. Get some food in the house...then tackle the house.

    As for numbers, well ride the wave. Take it one number at a time!

    I will pray for you. From one mother to another, I GET IT!!!!!!!

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  4. Tis the season thats for sure...
    I am TRYING to get caught up a little today meself. Get some rest... It will help you regroup. we'll be thinkin about you.

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  5. That is really hard to make a change but have other variables that may or may not be affecting what is going on. I know that Addison's body is still so sensitive to insulin..and we are still on diluted. Just watch the patterns and listen to your gut and make adjustments as you need to. I am sorry you aren't getting much sleep..Take care of yourself as best you can and don't be afraid to ask your family and friends for help so you CAN get a little rest!! Take Care..

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  6. Yeah take a deep breathe and get some rest . Nap when elise is napping and yes she will be fine . as for the christmas tree take it one day at a time and one thing at a time . I have been so sick for a wk now . Today is first day I have been out of bed for more than an hr . God bless and we are all here for you . and yes the diluted version is very much different and you have to be carefull with it . can cause many lows if not carefull . Oh well just keep an eye on it . we all love you and yours .

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  7. First Joanne, and big warm hug for you. I am reminded often by my wonderful mom that "we must take care of us first, so we can take care of others" With that said, please do something to nurture you! A nap, a bath whatever makes you feel rested.
    Do what you feel is most important first. Make sure all of you are eating well and try to get the rest you need. Take time to laugh and play.. Oh yeah, enjoy a bar of dark chocolate!!!
    Tyler is also sensitive to insulin, we chase lows all the time and it is exhausting.
    The storm will pass.
    You are loved!

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