Elise starts pre-school tomorrow, and I'm a bit freaked out. And yes, a lot of it is due to the fact that she has never been apart from me (aside from the time I was in the hospital having Mattias).
But most of it is because we have not figured that freaking full-strength insulin crap out. And I'm a little frustrated, can you tell?
I can give her the same dose at breakfast, same food, same EVERYTHING and she either goes crazy low, or crazy high. There is no in between with this stuff. Plus her blood sugar is roller-coastering all over the place. Today, only 45 minutes after breakfast, she went down to 63 and skyrocketed to almost 400 after lunch. I didn't go crazy on the carbs for the low, because she was 132 right before her lunch.
But on other days, she stays in the 200s right after breakfast up until about 3:00 pm, when she starts to go down.
I don't get it, and I am so afraid to send her off to school if she's having these lows (which she does every other day or so). I don't even know where to start to make changes and I freaking HATE the fact that we can't even turn to the CDEs for help.
I think the worst part is how it's affecting her behavior. If she's sporting any kind of attitude or throwing a tantrum, it's always when she's rising or falling fast on the Dexcom. It's getting downright nasty these days and we're kind of at the end of our rope on how to deal with her.
Part of me wants to go back to using diluted, because we never saw her numbers roller-coaster like this before. But I know we just need to try and figure it out. Right now is just a bad time to be doing it.
To top everything off, Mattias has reflux something terrible. He spits up at least 5 times after every feeding (that's per side, not the whole feeding). He is so miserable all the time, even though he's on medication. I think yesterday I changed his outfit 8 times and it seems that all I do these days is laundry.
I don't think I'd be as stressed about this if it wasn't for the fact she was starting school tomorrow. How do you guys handle making adjustments on days when your kids are away from you? Should I keep her home until we somewhat get a handle on this?
Man oh man... it's a "diabetes-can-suck-it" kind of day.
1 week ago